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Progressive Supranuclear Palsy PSP Blog by Laura Louizos, Since 2018

Undiagnosed or Misdiagnosed PSP, MSA, CBD, Atypical Parkinsonism

Are you undiagnosed or misdiagnosed?

Has you or your loved one been misdiagnosed or undiagnosed and you are searching for answers? Has PSP, MSA or CBD been mentioned? It might be helpful to mention PSP/MSA/CBD,...

1 comment

Are you undiagnosed or misdiagnosed?

Has you or your loved one been misdiagnosed or undiagnosed and you are searching for answers? Has PSP, MSA or CBD been mentioned? It might be helpful to mention PSP/MSA/CBD,...

1 comment
Importance of taking Levodopa at the same time, everytime for PSP

Do you take Levodopa or other time sensitive meds

Parkinson's Canada has launched a great resource and program to help healthcare providers and care facilities understand the importance of patients receiving specific medications on time every time! If you...

Do you take Levodopa or other time sensitive meds

Parkinson's Canada has launched a great resource and program to help healthcare providers and care facilities understand the importance of patients receiving specific medications on time every time! If you...

Progressive Supranuclear Palsy Demands and Changes

Do your loved ones become more demanding?

By: Laura Louizos It's Exhausting! I miss it now and would trade anything for it back, but yes at the time it was very exhausting. 

Do your loved ones become more demanding?

By: Laura Louizos It's Exhausting! I miss it now and would trade anything for it back, but yes at the time it was very exhausting. 

How much is too much info Progressive Supranuclear Palsy

How much info is too much?

By: Laura Louizos My Mom knew most, she would tell me she didn’t want to know or talk about it....But she would always ask me questions and if she wanted...

How much info is too much?

By: Laura Louizos My Mom knew most, she would tell me she didn’t want to know or talk about it....But she would always ask me questions and if she wanted...

Progressive Supranuclear Palsy Guilty Pleasures

Favourite food, alcoholic drink or guilty pleas...

By: Laura Louizos When it comes to their favourite food, alcoholic drink or guilty pleasure who are we to stop it as long as there is no direct negative effect...

Favourite food, alcoholic drink or guilty pleas...

By: Laura Louizos When it comes to their favourite food, alcoholic drink or guilty pleasure who are we to stop it as long as there is no direct negative effect...

Atypical Parkinsonism and Diagnosing

Why does it take so long to get a diagnosis for...

PSP, MSA, CBD is a clinical diagnosis and can only be officially confirmed after an autopsy.  This makes it hard along with how rare and little is known about them to...

Why does it take so long to get a diagnosis for...

PSP, MSA, CBD is a clinical diagnosis and can only be officially confirmed after an autopsy.  This makes it hard along with how rare and little is known about them to...

Laura Louizos, Blog Author

Laura Louizos is a blogger and advocate for PSP (Progressive Supranuclear Palsy) and Founder of CCF for PSP Awareness.

PSP is a rare and debilitating neurological disorder that affects movement, balance, vision, speech, and cognitive function. Laura's mother was diagnosed with PSP in 2018, and since then, Laura has been dedicated to raising awareness about the disease and providing support to others affected by it.

Through our blog, Laura shares her personal journey as a caregiver, including her struggles, triumphs, and insights. She also provides resources and information about the disease, as well as tips and advice for living with PSP. Laura's writing is candid, inspiring, and informative, and her blog has become an important resource for the PSP community.

Laura is a passionate advocate for PSP awareness, and she works tirelessly to increase understanding and support for those affected by the disease. Her blog is a testament to her dedication and commitment to improving the lives of those with PSP, and she is a valuable voice in the fight against this devastating condition.