Zoom Support Groups

We are excited to announce our Zoom support meetings that provide a virtual platform for us to connect, share, and support one another on our journeys. These meetings will serve as a valuable opportunity to come together, learn from each other's experiences, and find solace in a supportive community.

Open to All - Thursday Weekly Support Group

Register Here

Thursday Weekly Meeting 7-9pm (Eastern Time)

Meeting Details:

🗓️ Frequency: Every Thursday 

 Time: 7-9pm Eastern Time (Canada & USA)

🌍 Zoom Platform 

💻 Registration: REGISTER HERE

Thursday Meetings are open to All; Caregivers, Individuals, Healthcare Workers and Loved Ones Touched by Atypical Parkinsonism! Everyone is Welcome across the Globe!

Last Thursday of Every Month - Speaker with Open Discussion

October 26th, 2023 Speaker - Tim Brown (Tim Talks) View Recording
November 30th, 2023 Speaker - Tim Brown (Tim Talks) View Recording
December 28th, 2023 Speaker - No Meeting (Holiday)
January 25th, 2024 Speaker - Tim Brown (Tim Talks) View Recording
February 29th, 2024 Speaker - (Rare Disease Day)
March 28th, 2024 Speaker - Tim Brown (Tim Talks)


 Thursday Support Group Facilitator:

Kate Borgert

I am a recent graduate of Queen’s University planning to pursue a career in genetic counseling. I think it’s really important for health care providers to learn from the patients lived experience in order to provide the best care possible. I want to learn from the experiences of individuals with PSP and their caretakers to inform my future practice, but also because your stories are important and raising awareness about conditions such as PSP is crucial to make progress in research and management options.



Caregivers Support After the Journey - Grief and Loss

Register Here

Third Tuesday Each Month 4-5pm (Eastern Time)

Meeting Details:

🗓️ Frequency: Third Tuesday of Each Month 

 Time: 4-5pm Eastern Time (Canada & USA)

🌍 Zoom Platform 

💻 Registration: REGISTER HERE

Join us for a compassionate and informative Zoom support meeting, "Caregiver Support After the Journey - Grief and Loss." This virtual gathering is designed to provide a safe and understanding space for caregivers who have journeyed through the challenges of caregiving and are now navigating the complex terrain of grief and loss.

Caring for a loved one can be both a rewarding and emotionally taxing experience, and often, the grief and loss that follow can be overwhelming. Whether you have recently lost a loved one or are in the process of grieving, this support meeting aims to connect you with a community of individuals who understand the unique struggles and emotions that caregivers face.

During these sessions, we will:

1. Share experiences: Participants will have the opportunity to share their personal stories, challenges, and triumphs in a supportive environment where they can openly express their feelings and emotions.
2. Learn coping strategies: Learn valuable insights, coping strategies, and resources that help caregivers manage the complex emotions that accompany grief and loss.
3. Build connections: Connect with fellow caregivers who have faced similar experiences. Building a network of support can provide comfort and reassurance during the grieving process.
4. Foster healing: Through discussions, exercises, and shared insights, we aim to promote emotional healing and help participants find a path toward acceptance and resilience.

This virtual support meeting is open to caregivers of all backgrounds and experiences. Whether you cared for a family member, friend, or loved one, your journey is valid, and we are here to support you through the challenges of grief and loss.

Tuesday Support Group Facilitator:

Dr George Ackerman

George is from Brooklyn, N.Y. Now residing in Florida, he works in the fields of law, police, and education. George lost his mother, Sharon Riff Ackerman on 1/1/2020 to Parkinson’s Disease. He wanted to honor his mother and continue to help the awareness cause. With his family, they started TogetherForSharon® to keep his mother, Sharon's, memory alive and to share the message of Awareness and hope for a cure.


About Us:

The Coleen Cunningham Foundation serves individuals and families dealing with Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA) and Corticobasal Degeneration (CBD).

We are a dedicated Non-Profit Foundation Board made up of compassionate volunteers, each with a deeply personal connection to Atypical Parkinsonism. Our unifying bond stems from shared experiences - the struggle to secure a diagnosis, navigating unfamiliar healthcare landscapes, and grappling with a lack of information and community support. These challenges, felt keenly by many families across Canada dealing with Atypical Parkinsonism, have ignited a fervent passion within us.

Moved by our experiences, our mission is not only to provide support but to ensure that no family in Canada faces the same challenges alone. We focus on conditions like Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA), and Corticobasal Degeneration (CBD), all forms of Atypical Parkinsonism often overlooked in mainstream healthcare discourse.

Our vision is to evolve into a National Charity, providing unwavering assistance to every Canadian affected by these conditions. We strive to deliver resources, educational initiatives, and comprehensive support to communities, healthcare teams, and families impacted by these diseases. We believe in forging a well-informed, empathetic community that can truly comprehend and empathize with the struggles associated with these complex conditions.

We stand firm in our commitment that "No One Walks Alone." In every step of this journey, we are here to share the load, provide a guiding hand, and foster a supportive network that ensures no one feels isolated or unsupported. We are the embodiment of solidarity, and in our pursuit of making a difference, we strive to bring light to the shadows of Atypical Parkinsonism in Canada.

No One Walks Alone!

PSP Awareness Shop

Make a purchase with purpose. Each sale supports the fight against Atypical Parkinsonism through the Coleen Cunningham Foundation for PSP Awareness!