On the Journey - Weekly Zoom Support Group

Meeting Details

🗓️ Frequency: Every Thursday

⏰ Time: 7-9pm Eastern Time

🌍 Platform: Zoom

💻 Registration: Register Here

Open to all: Caregivers, Individuals, Healthcare Workers, and Loved Ones touched by Atypical Parkinsonism!

Time Zone Conversions (7 PM EST):

• UTC/GMT: 12 AM next day
• PST: 4 PM
• MST: 5 PM
• CST: 6 PM
• BST (UK): 1 AM next day
• AEST (Australia): 11 AM next day
• IST (India): 5:30 AM next day

Note: Adjust for Daylight Saving Time where applicable

1. Provide Compassionate Respite and Hospice Care

• Respite Vacations: Offer families affected by Atypical Parkinsonism the opportunity to create cherished memories through specially designed respite vacations.
• Respite Hospice in the Caribbean: Establish a dedicated hospice facility in the Caribbean that provides comprehensive care and relaxation for families, ensuring a serene environment for both patients and caregivers.

2. Support and Empower Families and Caregivers

• Support Groups: Facilitate regular support group meetings to provide emotional and practical support for caregivers, patients, and families.
• Educational Resources: Develop and distribute educational materials to help families and caregivers understand and manage the complexities of Atypical Parkinsonism.
• Advocacy: Advocate for the needs and rights of those affected by Atypical Parkinsonism at both the local and national levels.

3. Advance Medical Understanding and Management

• Collaborative Research: Partner with medical institutions and researchers to support studies aimed at understanding Atypical Parkinsonism and developing effective treatments.
• Medical Insights and Training: Provide healthcare professionals with the latest insights and training on Atypical Parkinsonism to improve patient care.

4. Promote Awareness and Education

• Public Awareness Campaigns: Conduct campaigns to raise public awareness about Atypical Parkinsonism and the challenges faced by those affected.
• Educational Events: Host seminars, webinars, and workshops to educate the public, healthcare professionals, and policymakers about Atypical Parkinsonism.

5. Foster a Supportive Community

• Online Community Platform: Create and maintain an online platform where individuals and families can share experiences, find support, and access resources.
• Engage with Stakeholders: Build partnerships with organizations, companies, and individuals dedicated to supporting neurological disorders to enhance our outreach and impact.

6. Expand Global Reach

• International Collaboration: Work with international partners to share knowledge, resources, and best practices in the care and management of Atypical Parkinsonism.
• Resource Distribution: Ensure that educational and support materials are accessible to a global audience, reaching as many affected individuals and families as possible.