On the Journey - Weekly Zoom Support Group

We are excited to announce our Zoom support meetings that provide a virtual platform for us to connect, share, and support one another on our journeys. These meetings will serve as a valuable opportunity to come together, learn from each other's experiences, and find solace in a supportive community.

Open to All - Thursday Weekly Support Group

Register Here

Thursday Weekly Meeting 7-9pm (Eastern Time)

Meeting Details:

🗓️ Frequency: Every Thursday 

 Time: 7-9pm Eastern Time (Canada & USA)

🌍 Zoom Platform 

💻 Registration: REGISTER HERE

Thursday Meetings are open to All; Caregivers, Individuals, Healthcare Workers and Loved Ones Touched by Atypical Parkinsonism! Everyone is Welcome across the Globe!

Last Thursday of Every Month - Speaker with Open Discussion

May 30th, 2024 Speaker - Tim Brown (Awareness Month)
April 25th, 2024 Speaker - Tim Brown (Tim Talks) 
March 28th, 2024 Speaker - Tim Brown (Tim Talks) View Recording
February 29th, 2024 Open Discussion - (Rare Disease Day) No Recording
January 25th, 2024 Speaker - Tim Brown (Tim Talks) View Recording
December 28th, 2023 Speaker - No Meeting (Holiday)
November 30th, 2023 Speaker - Tim Brown (Tim Talks) View Recording
October 26th, 2023 Speaker - Tim Brown (Tim Talks) View Recording

 

 Thursday Support Group Facilitator:

Kate Borgert

I am a recent graduate of Queen’s University planning to pursue a career in genetic counseling. I think it’s really important for health care providers to learn from the patients lived experience in order to provide the best care possible. I want to learn from the experiences of individuals with PSP and their caretakers to inform my future practice, but also because your stories are important and raising awareness about conditions such as PSP is crucial to make progress in research and management options.

 

 

 

About Us:

The Coleen Cunningham Foundation serves individuals and families dealing with Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA) and Corticobasal Degeneration (CBD).

We are a dedicated Non-Profit Foundation Board made up of compassionate volunteers, each with a deeply personal connection to Atypical Parkinsonism. Our unifying bond stems from shared experiences - the struggle to secure a diagnosis, navigating unfamiliar healthcare landscapes, and grappling with a lack of information and community support. These challenges, felt keenly by many families across Canada dealing with Atypical Parkinsonism, have ignited a fervent passion within us.

Moved by our experiences, our mission is not only to provide support but to ensure that no family in Canada faces the same challenges alone. We focus on conditions like Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA), and Corticobasal Degeneration (CBD), all forms of Atypical Parkinsonism often overlooked in mainstream healthcare discourse.

Our vision is to evolve into a National Charity, providing unwavering assistance to every Canadian affected by these conditions. We strive to deliver resources, educational initiatives, and comprehensive support to communities, healthcare teams, and families impacted by these diseases. We believe in forging a well-informed, empathetic community that can truly comprehend and empathize with the struggles associated with these complex conditions.

We stand firm in our commitment that "No One Walks Alone." In every step of this journey, we are here to share the load, provide a guiding hand, and foster a supportive network that ensures no one feels isolated or unsupported. We are the embodiment of solidarity, and in our pursuit of making a difference, we strive to bring light to the shadows of Atypical Parkinsonism in Canada.

No One Walks Alone!

AWARENESS SHOP

Make a purchase with purpose. Each sale supports the fight against Atypical Parkinsonism through the Coleen Cunningham Foundation!

SHOP HERE