Faces & Voices of Atypical Parkinsonism - PSP - MSA - CBD - DLB

Welcome to the Faces & Voices of Atypical Parkinsonism - PSP - MSA - CBD - DLB

 

Your Journey with Atypical Parkinsonism Matters – Become a Beacon of Hope


Share your personal story with Atypical Parkinsonism, including Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA), Corticobasal Degeneration (CBD), and Dementia with Lewy Bodies (DLB), whether you are diagnosed, a caregiver, family member, friend, or medical professional. Together, we can light the path toward understanding and hope.

Welcome to Our Community

Atypical Parkinsonism might include rare conditions, but your story is uniquely powerful. Here at the Coleen Cunningham Foundation (CCF) for Atypical Parkinsonism Awareness, we're dedicated to transforming individual experiences into a collective force for awareness and change.

Why Share Your Story?

Your narrative can:
  • Educate others about the realities of living with these conditions.
  • Inspire those who feel alone in their journey.
  • Support research by highlighting the need for advancements in treatments.

How You Can Participate:

Write or Record Your Story
  • Your Voice, Your Choice: Whether you prefer writing or speaking, your story is welcome in any form. Aim for 500-1000 words or a 2-4 minute video to share your experience vividly.
    Add Photos That Tell Your Tale
    • Include high-resolution images that capture moments of your journey. Each photo adds a face to the voice, making your story resonate even more deeply.
      Choose Your Voice
      • Opt for our AI voice-over technology if you'd rather not use your own voice or if recording audio isn't feasible for you.

          Our Promise to You:
          • Crafting Your Story: Our team will work diligently to convert your story into a video that honors your experience.
          • Respectful Editing: Any edits for clarity or length will be done with your approval. Your story, your rules.
          • Privacy Protection: Your privacy is paramount. We'll discuss how you wish to be identified or if you prefer anonymity.

            Preparing Your Submission:
            • Write or Record: Don't worry about perfection; focus on authenticity. Share your daily life, challenges, triumphs, or any message you have for others.
            • Send Photos or Videos: Use JPEG for photos or MP4 for videos. These visuals are crucial for bringing your written words to life.
              Submit Here: CCF@PSPAWARENESS.COM

              After Submission:
              • We'll Review: Our team will review your submission and might reach out for slight adjustments.
              • You'll Approve: Before anything goes live, you'll have the final say on the video content.
              • Go Live: Once approved, your story will join others on our YouTube channel, website, and social media platforms, touching hearts and minds worldwide.

                The Ripple Effect of Sharing:

                Every story shared has led to:
                • Increased donations for research into these conditions.
                • More volunteers for clinical trials.
                • A stronger, more connected Atypical Parkinsonism community.

                Questions You Might Have:
                • Can I remain anonymous? Yes, we respect your privacy and can share your story without revealing your identity.
                • Need help writing? We can assist; just reach out to us with what you have.
                • How long will my video take to produce? Typically, within 3-5 weeks after submission, pending approval.

                By sharing your journey, you're not just telling a story; you're igniting change, providing comfort for those in need, and educating those unaware. Thank you for considering being part of this vital campaign.

                Together, We Are the Faces and Voices of Atypical Parkinsonism.


                Submit your story today and become a part of this global movement.

                Submit Here: CCF@PSPAWARENESS.COM

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