Social Media & Events Committee - Connecting Our Community

The Social Media & Events Committee of the CCF Coleen Cunningham Foundation plays a vital role in amplifying our mission to support individuals and families affected by Atypical Parkinsonism, including conditions like Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA), Corticobasal Degeneration (CBD), and Dementia with Lewy Bodies (DLB). Through strategic online engagement and community-driven events, we raise awareness, foster connections, and provide resources to ensure no one walks alone on this journey.

Upcoming Event: CCF Awareness Walk – May 3, 2025

Join us for the CCF Awareness Walk on May 3, 2025! This event is designed to unite our community in raising awareness about Atypical Parkinsonism while supporting those impacted by these conditions. Whether you're walking in honor of a loved one or to show solidarity, your participation makes a difference. Learn more and register here.

Meet the Committee

Katarina

Katarina Misljenovic

Director, Social Media & Events

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Simona

Simona Faienza

Social Media & Events

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Francesca

Francesca Faienza

Social Media & Events

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Nicolina

Nicolina Fasciano

Social Media & Events

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If you’re interested in volunteering, have questions about upcoming events, or want to learn more about how you can support our mission, reach out to us. Your involvement helps us continue providing critical programs like respite care, support groups, and educational resources.

Stay Connected: Follow us for the latest updates on events, initiatives, and ways to support the CCF community. Together, we can make a lasting impact for those touched by Atypical Parkinsonism.

Your support is invaluable—thank you for helping us ensure that no one walks alone.

About the Coleen Cunningham Foundation

We serve individuals and families affected by Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA), Corticobasal Degeneration (CBD), and Dementia with Lewy Bodies (DLB), providing support, education, and advocacy.

Our Mission

The Coleen Cunningham Foundation (CCF) honors Coleen Cunningham’s legacy by enhancing the quality of life for those with Atypical Parkinsonism through compassionate care, advocacy, and education.

Objectives

1. Compassionate Respite and Hospice Care

  • Respite Vacations: Create lasting memories for families.
  • Caribbean Hospice: Offer serene care for patients and caregivers.

2. Support and Empower Families

  • Support Groups: Emotional and practical support.
  • Resources: Educational materials for managing Atypical Parkinsonism.
  • Advocacy: Championing patient and caregiver rights.

3. Advance Medical Understanding

  • Research: Collaborate on studies for better treatments.
  • Training: Equip healthcare professionals with insights.

4. Promote Awareness

  • Campaigns: Raise public awareness of Atypical Parkinsonism.
  • Events: Host educational seminars and webinars.

5. Foster Community

  • Online Platform: Share experiences and resources.
  • Partnerships: Enhance outreach with allied organizations.

6. Expand Global Reach

  • Collaboration: Share knowledge internationally.
  • Resources: Make support accessible worldwide.

Commitment to Excellence

We uphold the highest standards of care and professionalism, ensuring exceptional support for every family navigating Atypical Parkinsonism.