Who We Are

The Coleen Cunningham Foundation (CCF) provides compassionate support and resources to individuals and families affected by Atypical Parkinsonism. Our mission is to enhance the quality of life for patients through comprehensive care, focusing on respite and hospice care, support groups, and advocacy. We strive to create a nurturing environment that fosters hope, understanding, and meaningful connections, empowering caregivers and patients to navigate the challenges of Atypical Parkinsonism with dignity and resilience.

Support CCF

Your Donations to CCF support our Programs for Individuals and Families touched by Atypical Parkinsonism. With your donations we are able to offer support and resources to those in need, and make sure No One Walks Alone on this journey.

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Useful Information

  • Support & Advocacy Committee

    We aim to educate the public and medical community about atypical parkinsonism, promote early diagnosis, and support research for better treatments and a cure.

    Join Us and Make a Difference for PSP, MSA, CBD, DLB!

    LEARN MORE 

  • Faces & Voices of Atypical Parkinsonism

    Share your personal story with Atypical Parkinsonism, including PSP, MSA, CBD, and DLB, whether you are diagnosed, a caregiver, family member, friend, or medical professional. Together, we can light the path toward understanding and hope.

    LEARN MORE 

  • On the Journey - Weekly Zoom Support Group

    This Meeting is open to All; Caregivers, Individuals, Healthcare Workers and Loved Ones.

    Every Thursday 7-9 pm ET

    Last Thursday of Every Month - Speaker with Open Discussion

    LEARN MORE 

  • Events & Fundraisers

    We host and participate in awareness walks and fundraising initiatives to raise funds and awareness for Atypical Parkinsonism.

    Over $30,000 Raised

    for Atypical Parkinsonism Research and Supports!

    VIEW EVENTS 

  • Library - Understanding Atypical Parkinsonism

    Find the information, support, and inspiration you need to better understand and manage these challenging conditions. Our library includes medical guides, personal memoirs, and practical advice to help patients, caregivers, and families navigate the complexities of Atypical Parkinsonism.

    VIEW LIBRARY 

  • Atypical Parkinsonism Blog

    Full of Valuable Resources, Information and Support.

    By Laura Louizos, since 2018.

    We have hundreds of comments on our blog posts from around the globe that offer valuable insight and support from others on this journey!

    VIEW BLOG 

Resources

Understanding Atypical Parkinsonism

Find the information, support, and inspiration you need to better understand and manage these challenging conditions. Our library includes medical guides, personal memoirs, and practical advice to help patients, caregivers, and families navigate the complexities of PSP, MSA, CBD.

View Library

Atypical Parkinsonism Blog by: Laura Louizos

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  • The Shift in Roles: Caring for Our Parents

    The Shift in Roles: Caring for Our Parents

    Laura Louizos

    As our parents age, especially when they face health challenges, we often find ourselves stepping into roles we never imagined. It's a profound shift – from being the child to...

    The Shift in Roles: Caring for Our Parents

    Laura Louizos

    As our parents age, especially when they face health challenges, we often find ourselves stepping into roles we never imagined. It's a profound shift – from being the child to...

  • Understanding the Four Stages of Multiple System Atrophy (MSA) with Detailed Symptom Description

    Understanding the Four Stages of Multiple Syste...

    Laura Louizos

    Multiple System Atrophy (MSA) is a rare, progressive neurodegenerative disorder that impacts movement, balance, and autonomic functions. Here's a closer look at the symptoms across its four stages: Stage 1:...

    Understanding the Four Stages of Multiple Syste...

    Laura Louizos

    Multiple System Atrophy (MSA) is a rare, progressive neurodegenerative disorder that impacts movement, balance, and autonomic functions. Here's a closer look at the symptoms across its four stages: Stage 1:...

  • The Power of Shared Experiences in Navigating Atypical Parkinsonism

    The Power of Shared Experiences in Navigating A...

    Laura Louizos

    When facing the challenges of atypical Parkinsonism, including conditions like Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA), and Corticobasal Degeneration (CBD), the journey can feel isolating and overwhelming. However,...

    The Power of Shared Experiences in Navigating A...

    Laura Louizos

    When facing the challenges of atypical Parkinsonism, including conditions like Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA), and Corticobasal Degeneration (CBD), the journey can feel isolating and overwhelming. However,...

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Resource Downloads CurePSP

These resources are made available by CurePSP and are for anyone seeking to educate themselves about the symptoms, trajectory, treatments, and management of these diagnoses. 

©2024 CurePSP, Inc., unless attribution otherwise noted. CurePSP, Unlocking the Secrets of Brain Disease, and Because Hope Matters are registered trademarks of CurePSP, Inc.

Click on the images to find the online version to read, download or print.

                    
CurePSP Brochure Catalogue
Thanks to CurePSP, these brochures and educational pieces are available in print format upon request, at no cost, and are suitable for public and healthcare professionals.
Source: CurePSP 01/2024
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