Atypical Parkinsonism PSP, MSA, CBD
Progressive Supranuclear Palsy (PSP) is an uncommon brain disorder that affects movement, control of walking (gait) and balance, speech, swallowing, vision, mood and behavior, and thinking. The disorder’s long name indicates that the disease worsens (progressive) and causes weakness (palsy) by damaging certain parts of the brain above nerve cell clusters called nuclei (supranuclear).
Multiple System Atrophy (MSA) is a rare condition of the nervous system that causes gradual damage to nerve cells in the brain. This affects balance, movement and the autonomic nervous system, which controls several basic functions, such as breathing, digestion and bladder control.
Corticobasal Degeneration (CBD) is a rare disease in which areas of your brain shrink and your nerve cells degenerate and die over time. The disease affects the area of the brain that processes information and brain structures that control movement.
Supports & Resources
Helpful Links and Resources!
Tons of great Links to the most helpful resources for Parkinsonism. Progressive Supranuclear Palsy, Multiple System Atrophy, Corticobasal Degeneration.
Online Support Groups (CurePSP)
If you can't make it to a meeting and need support, check out these online support groups offered by CurePSP. Attend them from the comfort of your home at your convenience!
Rossy PSP Centre
A major Canadian PSP research centre which will contribute to a global effort directed at better understanding these complex neurodegenerative disease.
LTF AWARENESS APPAREL SHOP!
You Shop, We Give! A portion of all sales are donated to Atypical Parkinsonism research! Spread awareness for PSP, MSA, CBD and support research for a Cure! New items added often!
ABOUT US
Laura started PSP Awareness In May 2019 to help support & spread Awareness throughout the communities and in the medical field for Progressive Supranuclear Palsy (PSP) and Atypical Parkinsonism. Laura’s Mom (Coleen Cunningham) was officially diagnosed in late 2018 with PSP after being misdiagnosed for a couple years. We tracked symptoms as far back as 2015. She rapidly progressed after official diagnosis and unexpectedly but peacefully passed away in her sleep beside Laura on May 18, 2019.
We struggled to find resources and supports for this rare neurological disorder and not many doctors or specialist had even heard of it (1 out of 10). It was very frustrating and discouraging for all of us. Laura decided to make it her mission to find and provide the best care and resources for her mom, and is passing along her knowledge and experience in hopes it will help others! We have started to make some noise online bringing awareness and much needed attention to these rare diseases. Our Goal is to reach and support all those suffering and in need of support across the globe with PSP/MSA/CBD.
There is no known cause, treatment or cure for Atypical Parkinsonism - YET!
Help us change that!
We have launched an Awareness Shop (Limited Time Frame) that offers Atypical Parkinsonism (PSP, MSA, CBD) Awareness T-Shirts, Face Masks, Tote Bags, Decals and more. We donate a portion of all sales to Atypical Parkinsonism Research at The Rossy Progressive Supranuclear Palsy Centre. Our Hope is to help spread awareness worldwide with our hand designed items for PSP, MSA, CBD and support research for a cure. Our Items are designed to help showcase and increase awareness for these rare neurological diseases around the world. Please take a look in our shop and check back often as we add new designs and products regularly!
Atypical Parkinsonism Blog & News
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Wheels for a Cause Fundraiser for MSA
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PSP Awareness Ride in Australia May 2, 2021
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The Butcherbird Sings By: Julie Campbell
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The RiJe® Dysphagia Cup
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Red Light Therapy Testimonial for use with PSP
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Red Light Therapy (RLT) with PSP, MSA, CBD
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Progressive Supranuclear Palsy PSP Medical Resource Journal
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The International Dysphagia Diet Standardisation Initiative (IDDSI)
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Treatment of Disturbed Sleep in PSP
