Resource Library
Welcome to Our Atypical Parkinsonism Library
Your go-to resource for books on Atypical Parkinsonism, including Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA), Corticobasal Degeneration (CBD), and Dementia with Lewy Bodies (DLB). This curated collection features medical guides, personal memoirs, and practical advice to support patients, caregivers, and families in understanding and managing these complex conditions.
Books Available on Amazon
Living with Progressive Supranuclear Palsy: A Guide to Symptom Management
By Laura Louizos, this comprehensive guide offers practical strategies and emotional support for patients, caregivers, and healthcare professionals managing PSP symptoms.
Handout Book for New Caregivers: Understanding and Caring for Someone with PSP
An essential resource for caregivers, ensuring best practices and unified support for PSP care.
Mindfulness and Progressive Supranuclear Palsy: Techniques for Coping
A practical guide with mindfulness techniques to help PSP patients and caregivers cope.
Navigating Progressive Supranuclear Palsy (PSP): A Comprehensive Guide
Expert knowledge and advice for patients, caregivers, and providers managing PSP.
A Legacy of Hope: The Journey to Cure PSP and Transform Lives (Fiction)
A fictional narrative inspired by real PSP experiences and resilience.
The PSP Chronicles
Tim Brown’s personal journey with PSP and FTD, raising awareness for brain diseases.
The PSP Chronicles Volume II: Keep On, Keeping On
Tim Brown’s continued story, offering hope amid PSP’s challenges.
The PSP Chronicles Volume III: Putting Purpose To PSP (Kindle)
Tim Brown’s third volume, emphasizing purpose in living with PSP.
Beyond... The PSP Chronicles
Tim Brown’s advocacy platform, supporting PSP-CBD research with proceeds.
Progressive Supranuclear Palsy Resource Journal
A 365-day journal to track tasks and medical info for PSP care.
Progressive Supranuclear Palsy Daily Medication Tracking Journal
A year-long journal to monitor medication administration for PSP.
Hummingbird: Poetry on PSP & Parkinson’s
Poetry and prose reflecting PSP and Parkinson’s experiences.
Last Dance at the Savoy: Life, Love and Caregiving for Someone with PSP
Geoff Miller’s PSP story with caregiving insights by Scott.
Hard Days: My Life With a Neurodegenerative Disease
A patient’s PSP journey, from symptoms to treatment.
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About the Coleen Cunningham Foundation
We serve individuals and families affected by Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA), Corticobasal Degeneration (CBD), and Dementia with Lewy Bodies (DLB), offering support, education, and advocacy.
Our Mission
The Coleen Cunningham Foundation (CCF) honors Coleen Cunningham’s legacy by improving the quality of life for those with Atypical Parkinsonism through compassionate care, advocacy, and education. We aim to build a supportive community, provide respite and hospice care, and advance understanding and management of these rare neurological disorders.
Commitment to Excellence
We are dedicated to upholding the highest standards of care, compassion, and professionalism, ensuring exceptional support for every individual and family navigating Atypical Parkinsonism.