Marketing Committee - Spreading Awareness
Mission Statement of the Marketing Team
At the Coleen Cunningham Foundation (CCF), our Marketing Committee is driven by a shared passion to amplify awareness of Atypical Parkinsonism—conditions like Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA), Corticobasal Degeneration (CBD), and Dementia with Lewy Bodies (DLB). Our mission is to craft compelling stories, spark meaningful conversations, and inspire action that supports families, caregivers, and individuals touched by these rare disorders. Through creative campaigns and heartfelt outreach, we aim to ensure that no one walks alone on this journey.
Meet Our Committee
Rachel Tiff
Marketing Director
Hi, I'm Rachel, and I live in the UK. In November 2023, my dad was diagnosed with Progressive Supranuclear Palsy (PSP) after experiencing symptoms for a couple of years. This life-changing event led me to start working with the CCF after I came across their call for help with their online marketing campaigns. With a background in marketing and experience in the social care sector, I felt compelled to get involved and make a difference.
Outside of my work with the CCF, I am also the Marketing Director for an elderly care home organisation in the UK and a mother of two young children. I’m deeply committed to helping raise awareness of Atypical Parkinsonisms in the UK and beyond, and I truly hope my efforts will lead to greater understanding and support for those affected by these conditions.
Our Why
My why is my dad. Watching him suffer from the devastating effects of PSP has been incredibly difficult, and it's fueled my passion for raising awareness about the condition. I believe that both the medical community and the general public need to understand more about the devastating impact of Atypical Parkinsonisms so that those living with these conditions and their families can receive the support they deserve. By bringing attention to these conditions, I hope that one day we’ll see more research and, ultimately, a cure. ~ Rachel
Our Campaigns
We’re proud of the waves we’ve made and the ones we’re planning! Right now, we’re buzzing about the Atypical Awareness Walk 2025, set for May 3 in Burlington, Ontario, at Burlington Mall’s The Hub. It’s a chance to walk, connect, and raise funds for respite and vacation care grants. We’re also rolling out the Faces and Voices Campaign, a heartfelt effort to share real stories from those touched by Atypical Parkinsonism—think video snippets, blog posts, and social media spotlights that put names and faces to our cause. Next up, we’re cooking up a social media push for Global Atypical Parkinsonism Awareness Months in March, April, May, June, and October—think inspiring stories, shareable graphics, and a call to donate. Want to get involved? Join the walk, share your story for Faces and Voices, amplify our posts with #AtypicalAwarenessWalk2025, or reach out to help shape our next big idea. Stay tuned for more details as we roll them out!
Meeting Details
Our Marketing Committee meets virtually on the second Wednesday of every month at 2:00 PM ET via Zoom. We brainstorm, tweak campaigns, and dream big. If you’re interested in joining us, drop us a line—new voices are always welcome!
Contact Us
Have a question, idea, or just want to say hi? Reach out to Rachel at rachel@pspawareness.com. We’d love to hear from you—whether you’re a supporter, a potential volunteer, or someone who shares our why.
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