We are a dedicated Non-Profit Foundation Board made up of compassionate volunteers, each with a deeply personal connection to Atypical Parkinsonism. Our unifying bond stems from shared experiences - the struggle to secure a diagnosis, navigating unfamiliar healthcare landscapes, and grappling with a lack of information and community support. These challenges, felt keenly by many families across Canada dealing with Atypical Parkinsonism, have ignited a fervent passion within us.

Moved by our experiences, our mission is not only to provide support but to ensure that no family in Canada faces the same challenges alone. We focus on conditions like Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA), and Corticobasal Degeneration (CBD), all forms of Atypical Parkinsonism often overlooked in mainstream healthcare discourse.

Our vision is to evolve into a National Charity, providing unwavering assistance to every Canadian affected by these conditions. We strive to deliver resources, educational initiatives, and comprehensive support to communities, healthcare teams, and families impacted by these diseases. We believe in forging a well-informed, empathetic community that can truly comprehend and empathize with the struggles associated with these complex conditions.

We stand firm in our commitment that "No One Walks Alone." In every step of this journey, we are here to share the load, provide a guiding hand, and foster a supportive network that ensures no one feels isolated or unsupported. We are the embodiment of solidarity, and in our pursuit of making a difference, we strive to bring light to the shadows of Atypical Parkinsonism in Canada.

No One Walks Alone!

The Coleen Cunningham Foundation’s mission is to provide individuals and families touched by Atypical Parkinsonism with support and resources to improve their quality of life and help make lasting memories. 

How we do that?

1. We spread awareness and support through our online platforms and support groups. (PSP Awareness)
2. Fundraising for our Programs that support families and individuals with Atypical Parkinsonism. 
3. Our hospice care home project (Coleen's), which is focused on providing a stress- and worry-free environment for the individual and their family. Our homes will aim to provide a place where you can be a family and make memories, all while we take care of the arrangements and care required. Our care teams will have specialized training, focusing specifically on Atypical Parkinsonism and the medical and caregiving challenges that come with it.

“No One Walks Alone”

There is no known cause, treatment or cure for Atypical Parkinsonism. 

Help us change that!

Atypical Parkinsonism occurs as four diseases in particular: dementia with Lewy bodies (DLB), multiple system atrophy (MSA), progressive supranuclear palsy (PSP), and corticobasal degeneration (CBD).

If we can be of help, please reach out to us. 

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CCF Board of Directors

Bill Cunningham	Terry Louizos
Cheryl Wing	Laura Louizos
January Will

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