Advocacy & Program Committee - Strengthening Lives, Raising Voices

Welcome to the Advocacy & Program Committee of the Coleen Cunningham Foundation. Our committee is dedicated to raising awareness about atypical parkinsonism, including Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA), Corticobasal Degeneration (CBD), and Dementia with Lewy Bodies (DLB), and providing support to those affected by these conditions.

Committee's Mission: We aim to educate the public and medical community about atypical parkinsonism, promote early diagnosis, and support research for better treatments and a cure. We are inspired by the legacy of all warriors and are committed to making a meaningful impact in the lives of individuals and families affected by these challenging conditions.

What We Do:

Get Involved: Your support is vital to our success. Whether you want to volunteer, share your story, or participate in our campaigns, there are many ways to get involved. Together, we can make a difference in the lives of those affected by atypical parkinsonism.

Our Committee Members

Stella Cutler

Stella Cutler

United States

Committee Chair

My name is Stella Cutler, and I’m from Potomac, Maryland. I currently attend a Jewish high school. When I'm not overwhelmed with schoolwork, I enjoy traveling and meeting new people. My true passion is raising awareness for atypical Parkinson's disorders. My Saba (grandfather) passed away almost five years ago, and I have dedicated myself to keeping his memory alive. I have been with the Coleen Cunningham Foundation for a year, serving as the Support and Advocacy Committee Chair. In this role, I manage all grants, volunteer events, and related activities, and I absolutely love it! I am also training to become the Executive Director, which means I'm fortunate enough to learn the ropes and hope to one day run the foundation. If you are based in the USA and want to get involved, please reach out!

Email

Peter Firmin

Peter Firmin

Australia

Support Group Leader

Email

Tim Brown

Tim Brown

Ontario, Canada

Support Group Leader

Email

Join Us: We hold regular meetings to discuss new ideas and plan our activities. If you're passionate about raising awareness and supporting the community, we invite you to join our committee as a member.

About the Coleen Cunningham Foundation

We serve individuals and families affected by Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA), Corticobasal Degeneration (CBD), and Dementia with Lewy Bodies (DLB), providing support, education, and advocacy.

Our Mission

The Coleen Cunningham Foundation (CCF) honors Coleen Cunningham’s legacy by enhancing the quality of life for those with Atypical Parkinsonism through compassionate care, advocacy, and education.

Objectives

1. Compassionate Respite and Hospice Care

  • Respite Vacations: Create lasting memories for families.
  • Caribbean Hospice: Offer serene care for patients and caregivers.

2. Support and Empower Families

  • Support Groups: Emotional and practical support.
  • Resources: Educational materials for managing Atypical Parkinsonism.
  • Advocacy: Championing patient and caregiver rights.

3. Advance Medical Understanding

  • Research: Collaborate on studies for better treatments.
  • Training: Equip healthcare professionals with insights.

4. Promote Awareness

  • Campaigns: Raise public awareness of Atypical Parkinsonism.
  • Events: Host educational seminars and webinars.

5. Foster Community

  • Online Platform: Share experiences and resources.
  • Partnerships: Enhance outreach with allied organizations.

6. Expand Global Reach

  • Collaboration: Share knowledge internationally.
  • Resources: Make support accessible worldwide.

Commitment to Excellence

We uphold the highest standards of care and professionalism, ensuring exceptional support for every family navigating Atypical Parkinsonism.

Donorbox Logo Donate