Support & Advocacy Committee

Welcome to the Support and Advocacy Committee of the Coleen Cunningham Foundation. Our committee is dedicated to raising awareness about atypical parkinsonism, including Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA), Corticobasal Degeneration (CBD), and Dementia with Lewy Bodies (DLB), and providing support to those affected by these conditions.

Committee's Mission: We aim to educate the public and medical community about atypical parkinsonism, promote early diagnosis, and support research for better treatments and a cure. We are inspired by the legacy of all warriors and are committed to making a meaningful impact in the lives of individuals and families affected by these challenging conditions.

What We Do:

  • Awareness Campaigns - $10,000 a month Google Ad Campaigns
  • Media Outreach - Newspaper, Radio, Podcast
  • Educational Videos - YouTube Channel
  • Volunteer Recruitment - Worldwide
  • Medical Community Engagement - Conventions, Schools, Hospitals

Get Involved: Your support is vital to our success. Whether you want to volunteer, share your story, or participate in our campaigns, there are many ways to get involved. Together, we can make a difference in the lives of those affected by atypical parkinsonism.

Peter Firmin

Peter Firmin

Australia

Support & Advocacy Director

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Tim Brown

Tim Brown

Ontario, Canada

Support & Advocacy Director

Email

Join Us: We hold regular meetings to discuss new ideas and plan our activities. If you're passionate about raising awareness and supporting the community, we invite you to join our committee as a member.

Join us for our monthly Advocacy & Support Committee meeting on Zoom. This global meeting is dedicated to discussing and planning our advocacy efforts and support programs for families affected by Progressive Supranuclear Palsy (PSP), Corticobasal Degeneration (CBD), and Multiple System Atrophy (MSA). It's a great opportunity to connect, collaborate, and contribute to making a positive impact in our community worldwide.

About the Coleen Cunningham Foundation

We serve individuals and families affected by Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA), Corticobasal Degeneration (CBD), and Dementia with Lewy Bodies (DLB), providing support, education, and advocacy.

Our Mission

The Coleen Cunningham Foundation (CCF) honors Coleen Cunningham’s legacy by enhancing the quality of life for those with Atypical Parkinsonism through compassionate care, advocacy, and education.

Objectives

1. Compassionate Respite and Hospice Care

  • Respite Vacations: Create lasting memories for families.
  • Caribbean Hospice: Offer serene care for patients and caregivers.

2. Support and Empower Families

  • Support Groups: Emotional and practical support.
  • Resources: Educational materials for managing Atypical Parkinsonism.
  • Advocacy: Championing patient and caregiver rights.

3. Advance Medical Understanding

  • Research: Collaborate on studies for better treatments.
  • Training: Equip healthcare professionals with insights.

4. Promote Awareness

  • Campaigns: Raise public awareness of Atypical Parkinsonism.
  • Events: Host educational seminars and webinars.

5. Foster Community

  • Online Platform: Share experiences and resources.
  • Partnerships: Enhance outreach with allied organizations.

6. Expand Global Reach

  • Collaboration: Share knowledge internationally.
  • Resources: Make support accessible worldwide.

Commitment to Excellence

We uphold the highest standards of care and professionalism, ensuring exceptional support for every family navigating Atypical Parkinsonism.

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