Support & Advocacy Committee

Welcome to the Support and Advocacy Committee of the Coleen Cunningham Foundation. Our committee is dedicated to raising awareness about atypical parkinsonism, including Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA), Corticobasal Degeneration (CBD), and Dementia Lewy Bodies (DLB) and providing support to those affected by these conditions.

Register for the Next Meeting (Third Tuesday of each month)
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Committees Mission: We aim to educate the public and medical community about atypical parkinsonism, promote early diagnosis, and support research for better treatments and a cure. We are inspired by the legacy of all warriors and are committed to making a meaningful impact in the lives of individuals and families affected by these challenging conditions.

What We Do:

  • Awareness Campaigns
  • Media Outreach
  • Educational Videos
  • Volunteer Recruitment
  • Medical Community Engagement

Get Involved: Your support is vital to our success. Whether you want to volunteer, share your story, or participate in our campaigns, there are many ways to get involved. Together, we can make a difference in the lives of those affected by atypical parkinsonism.

Join Us: We hold regular meetings to discuss new ideas and plan our activities. If you're passionate about raising awareness and supporting the community, we invite you to join our committee. Check for upcoming meeting dates and how you can participate.

Meeting Date: Third Tuesday of Every Month, 7:30pm ET

Register Here

Join us for our monthly Advocacy & Support Committee meeting on Zoom. This global meeting is dedicated to discussing and planning our advocacy efforts and support programs for families affected by Progressive Supranuclear Palsy (PSP), Corticobasal Degeneration (CBD), and Multiple System Atrophy (MSA). It's a great opportunity to connect, collaborate, and contribute to making a positive impact in our community worldwide.

First Meeting Recording - 

 

About Us: 

The Coleen Cunningham Foundation serves individuals and families dealing with Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA) and Corticobasal Degeneration (CBD).

Mission

The Coleen Cunningham Foundation (CCF) is dedicated to honoring the legacy of Coleen Cunningham by providing comprehensive support to individuals and families affected by Atypical Parkinsonism. Our mission is to improve the quality of life for those impacted by these rare neurological disorders through compassionate care, advocacy, and education. We strive to foster a supportive community, offer respite and hospice care, and advance the understanding and management of Atypical Parkinsonism.

Objectives

1. Provide Compassionate Respite and Hospice Care

  • Respite Vacations: Offer families affected by Atypical Parkinsonism the opportunity to create cherished memories through specially designed respite vacations.
  • Respite Hospice in the Caribbean: Establish a dedicated hospice facility in the Caribbean that provides comprehensive care and relaxation for families, ensuring a serene environment for both patients and caregivers.

2. Support and Empower Families and Caregivers

  • Support Groups: Facilitate regular support group meetings to provide emotional and practical support for caregivers, patients, and families.
  • Educational Resources: Develop and distribute educational materials to help families and caregivers understand and manage the complexities of Atypical Parkinsonism.
  • Advocacy: Advocate for the needs and rights of those affected by Atypical Parkinsonism at both the local and national levels.

3. Advance Medical Understanding and Management

  • Collaborative Research: Partner with medical institutions and researchers to support studies aimed at understanding Atypical Parkinsonism and developing effective treatments.
  • Medical Insights and Training: Provide healthcare professionals with the latest insights and training on Atypical Parkinsonism to improve patient care.

4. Promote Awareness and Education

  • Public Awareness Campaigns: Conduct campaigns to raise public awareness about Atypical Parkinsonism and the challenges faced by those affected.
  • Educational Events: Host seminars, webinars, and workshops to educate the public, healthcare professionals, and policymakers about Atypical Parkinsonism.

5. Foster a Supportive Community

  • Online Community Platform: Create and maintain an online platform where individuals and families can share experiences, find support, and access resources.
  • Engage with Stakeholders: Build partnerships with organizations, companies, and individuals dedicated to supporting neurological disorders to enhance our outreach and impact.

6. Expand Global Reach

  • International Collaboration: Work with international partners to share knowledge, resources, and best practices in the care and management of Atypical Parkinsonism.
  • Resource Distribution: Ensure that educational and support materials are accessible to a global audience, reaching as many affected individuals and families as possible.

Commitment to Excellence

At the Coleen Cunningham Foundation, we are committed to excellence in all our endeavors. We pledge to uphold the highest standards of care, compassion, and professionalism in our services, ensuring that every individual and family we support receives the best possible assistance and guidance.

Together, we can navigate the challenges of Atypical Parkinsonism, creating a brighter future for those affected by this condition.

No One Walks Alone!

Laura Louizos
Executive Director
Coleen Cunningham Foundation for
PSP Awareness

AWARENESS SHOP

Make a purchase with purpose. Each sale supports the fight against Atypical Parkinsonism through the Coleen Cunningham Foundation!

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