Coleen's Hospice Care Home

Our hospice care home project is focused on providing a stress- and worry-free environment for the individual and their family touched by Atypical Parkinsonism. Our homes will aim to provide a place where you can be a family and make memories, all while we take care of the arrangements and care required. Our care teams will have specialized training focused on Atypical Parkinsonism and the medical and caregiving challenges that come with it.

“No One Walks Alone”

With your support and generous donations, we hope to hit our goal and welcome our first residence by early 2025. 

Coleen Cunningham Foundation  (PSP Awareness) Business Plan: Coleen's Hospice Care Home

1.0 Executive Summary

Coleen's Hospice Care Home is a free-standing facility dedicated to providing hospice and palliative care services for individuals with Progressive Supranuclear Palsy (PSP). Located in a serene environment our 5-10 bed facility aims to offer a quiet, caring environment for those at the end of life. We also prioritize providing training for healthcare workers and students on hospice and palliative care principles related to PSP. 

Coleen's Hospice Care Home will operate in collaboration with the government, healthcare professionals, public support, and various stakeholders.

1.1 Objectives

Financial objectives for the first year are:

  • Raise adequate funding for start-up and construction.
  • Develop and implement strategies for ongoing funding needs for the first five years of the project.

Non-financial objectives:

  • Provide a peaceful and compassionate environment for individuals with PSP.
  • Deliver comprehensive palliative care services tailored to the unique needs of PSP patients.
  • Offer training programs for healthcare professionals and students on PSP-specific hospice and palliative care.

1.2 Mission

Our mission is to establish a free-standing hospice care home, Coleen's Hospice Care Home, specifically focused on PSP. By providing specialized care, we aim to fill the gap in services available for individuals with PSP.

1.3 Keys to Success

  • Strong support from the Government.
  • Engagement and collaboration with the medical community, public, corporate entities, NGOs, and other stakeholders.
  • Optimal utilization of a core paid staff to control costs.
  • Involvement of volunteer retired professionals in relevant disciplines, such as counselling and pastoral care, to minimize expenses.

2.0 Organization Summary

Coleen's Hospice Care Home is established by a collaboration between PSP Organizations, local healthcare professionals, and community members. The organization draws support from various entities, including PSP advocacy groups, medical associations, and community organizations.

The management structure includes an Oversight Committee, Advisory Committee, Public Relations Committee, Fundraising Committee, Events Committee, and Facilities Committee, responsible for different aspects of the project's management and operations.

2.1 What Makes Coleen's Hospice Care Home Unique.

Coleen's Hospice Care Home is distinct in its focus on Progressive Supranuclear Palsy (PSP) and providing specialized care for individuals with this condition. By offering a dedicated facility, we aim to address the unique needs of PSP patients and their families, which are not adequately met by existing healthcare services.

2.2 Legal Entity

Coleen's Hospice Care Home will be incorporated in accordance with local regulations. The organization will pursue the necessary legal status, such as nonprofit or charitable status, to ensure transparency and accountability in financial operations.

2.3 Start-up Summary

Start-up Expenses: Key elements of the start-up budget include the development of informational materials, marketing initiatives, and fundraising activities.

Start-up Assets: Funds have been raised through previous fundraisers and donations, totalling CAD $10,000 (as of May 2023).

Long-Term Assets: Long-term assets will include the purchased or leased facility. Construction or renovation costs are estimated at CAD $750,000  with an allocation of CAD $100,000 for initial furnishings and medical equipment.

2.4 Location and Facilities

The specific location for Coleen's Hospice Care Home is yet to be determined. Discussions with the Ministry of Health are underway to secure an appropriate site, either through land allocation or retrofitting an existing building.

3.0 Services

Coleen's Hospice Care Home will offer comprehensive hospice and palliative care services tailored to individuals with Progressive Supranuclear Palsy (PSP). Our services will include:

3.1 Service Description

At Coleen's Hospice Care Home, patients with PSP can expect compassionate, dignified, and personalized care. Our services will encompass the following:

  • Symptom Management: Our experienced medical staff will provide expert symptom management, focusing on alleviating pain, managing motor difficulties, addressing swallowing and speech challenges, and ensuring overall comfort.
  • Emotional and Psychological Support: We understand the emotional toll PSP can have on patients and their families. Our team of professionals, including psychologists and counsellors, will provide emotional support, counselling, and resources to help patients and families cope with the challenges of the disease.
  • Spiritual Care: Pastoral care will be available for those seeking spiritual support and guidance. We respect and honour the diverse spiritual and religious beliefs of our patients and will ensure their individual needs are met.
  • Interdisciplinary Care: A multidisciplinary team, including physicians, nurses, therapists, and social workers, will work collaboratively to develop personalized care plans for each patient, addressing their physical, emotional, and social needs.
  • Family Support: We recognize the vital role of families in the care of patients with PSP. We will provide support, education, and respite services to family members, giving them peace of mind and the opportunity to take care of themselves while their loved ones receive specialized care.
  • Bereavement Support: Our support extends beyond the patient's lifetime. We will provide bereavement counselling and support to families and loved ones during the grieving process.

3.2 Information and Educational Materials

To raise awareness and educate the public about PSP, we will develop informative materials, including brochures and pamphlets, describing the disease, its symptoms, available support, and how Coleen's Hospice Care Home can assist individuals and their families. These materials will be distributed to healthcare facilities, community centers, and relevant organizations.

4.0 Needs Analysis Summary

Our initiative addresses several key needs in caring for individuals with PSP:

4.1 Meeting the Needs of Patients

  • Ensuring patients with PSP receive specialized care that addresses their unique symptoms and challenges.
  • Providing a serene and supportive environment where patients can live their final days with dignity and respect.
  • Offering pain management and medical therapies tailored to the specific needs of PSP patients.

4.2 Supporting the Needs of Families

  • Providing families with peace of mind by ensuring their loved ones receive expert care and support.
  • Offering respite services to relieve families from the physical and emotional burdens of caregiving.
  • Assisting families in navigating the complexities of end-of-life care and providing bereavement support.

4.3 Filling the Gap in Services

  • Recognizing the limited availability of free-standing facilities dedicated to PSP care.
  • Collaborating with existing healthcare organizations, NGOs, and governmental institutions to address the unmet needs of PSP patients and their families.

5.0 Management Summary

The management of Coleen's Hospice Care Home will involve:

5.1 Overall Management

 A management board comprising representatives from PSP awareness organizations, healthcare professionals, community leaders, and experts in relevant fields will provide guidance, set management goals, and ensure operational standards are met. Standing committees, including Budgeting and Finance and Public Relations & Fundraising, will be responsible for specific aspects of management.

5.2 Personnel Plan

To ensure the smooth functioning of Coleen's Hospice Care Home, we will establish a dedicated team, including:

  • Medical Director: An experienced healthcare professional specializing in palliative care and PSP.
  • Full-time Registered Nurses (RNs): Skilled nurses responsible for coordinating and delivering patient care.
  • Full-time Medical Assistants: Trained professionals supporting the medical team in providing hands-on care to patients.
  • Cook: Responsible for preparing nutritious meals tailored to the dietary needs of patients with PSP.
  • Housekeeping: Staff members responsible for maintaining cleanliness and hygiene within the facility.
  • Janitorial and Grounds Maintenance: Personnel tasked with the upkeep of the facility's grounds, ensuring a safe and pleasant environment for patients and visitors.
  • Therapists: A team of therapists, including physical, occupational, and speech therapists, who will provide specialized therapies to address the unique needs of PSP patients.
  • Administrative and Development Personnel: Part-time staff members, such as a Business Manager and Public Relations Officer, who will oversee administrative tasks, fundraising initiatives, and community outreach.

6.0 Strategy and Implementation Summary Timeline

To ensure the successful implementation of Coleen's Hospice Care Home, the following timeline is proposed:

  • Ongoing Fundraising: Continual efforts will be made to secure funding from various sources, including the PSP awareness organizations, and potential partnerships with foundations and funding agencies.
  • Site Finalization: Determine the appropriate location for Coleen's Hospice Care Home in collaboration with the Ministry of Health, either through land allocation or retrofitting an existing building.
  • Construction Completion: Complete the necessary construction or renovation work, ensuring the facility meets the specific requirements for providing specialized care to PSP patients.
  • Establishment of Management Board: Form the management board comprising representatives from relevant organizations and professionals to provide strategic guidance and oversight.
  • Hiring of Staff: Recruit and hire qualified individuals for the various positions within the hospice care home, ensuring a skilled and compassionate team.
  • Completion of Furnishings: Furnish the facility with necessary equipment, medical supplies, and furnishings to create a comfortable and functional environment for patients and staff.
  • Open House: Host an open house event to introduce Coleen's Hospice Care Home to the community, stakeholders, and potential donors, raising awareness and generating support.
  • Acceptance of First Patients: Begin accepting patients in May 2025, ensuring a smooth transition and comprehensive care for individuals with PSP.
  • First Review: Conduct a review of operations and services in December 2025 to assess the progress, make necessary adjustments, and ensure ongoing quality improvement.

7.0 Financial Plan (Projected out 5 years) 

The financial sustainability of Coleen's Hospice Care Home will rely on the following sources:

  • Ongoing fundraising efforts by the PSP awareness organizations and communities.
  • Government subvention and support.
  • Income generation from paying patients who can afford specialized PSP care.

A detailed financial plan outlining revenue streams, expenses, and projected budgets for the first five years will be developed to ensure financial stability and long-term sustainability.

Note: For specific financial details and further information, please contact us at info@coleencunninghamfoundation.com

By establishing Coleen's Hospice Care Home, we aim to provide a compassionate and specialized care environment for individuals with PSP, addressing their unique needs and supporting their families during challenging times.

Attachments:

Medical Equipment:

  • Blood pressure apparatus
  • ECG machine
  • Glucometers
  • IV poles
  • Wheelchairs
  • Walkers
  • Canes
  • Call-button system

Medical Supplies:

  • Pain medications
  • Intravenous solutions
  • Oxygen
  • Dressings
  • Wound care supplies

Other Equipment & Supplies:

  • Desks
  • Stationery
  • Telephones
  • Medical charts
  • Computers
  • Refrigerators (medical use and staff use)
  • Stoves
  • Cooking equipment
  • Utensils
  • Gowns
  • Curtains/blinds
  • Towels
  • Washcloths
  • Adult diapers
  • Washing machines
  • Clothes dryer
  • Laundry detergent
  • Irons
  • Ironing board
  • Garbage bags

Furnishings: Room Furnishings:

  • Hospital beds
  • Dressers
  • Closets
  • Side tables
  • Chairs

Facility Furnishings:

  • Couches
  • Chairs
  • Tables

By procuring the necessary medical equipment, supplies, and furnishings as outlined in the attachments, Coleen's Hospice Care Home will be fully equipped to provide comprehensive care to patients with PSP.

We are committed to ensuring the highest standards of care, promoting awareness of PSP, and collaborating with stakeholders to make a positive impact on the lives of individuals and families affected by this condition. Together, we can create a compassionate and supportive environment where patients with PSP can find comfort, dignity, and peace during their end-of-life journey.

For more detailed information or to get involved and support our cause, please contact us at info@coleencunninghamfoundation.com

 

About Us

We are a dedicated Non-Profit Foundation Board made up of compassionate volunteers, each with a deeply personal connection to Atypical Parkinsonism. Our unifying bond stems from shared experiences - the struggle to secure a diagnosis, navigating unfamiliar healthcare landscapes, and grappling with a lack of information and community support. These challenges, felt keenly by many families across Canada dealing with Atypical Parkinsonism, have ignited a fervent passion within us.

Moved by our experiences, our mission is not only to provide support but to ensure that no family in Canada faces the same challenges alone. We focus on conditions like Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA), and Corticobasal Degeneration (CBD), all forms of Atypical Parkinsonism often overlooked in mainstream healthcare discourse.

Our vision is to evolve into a National Charity, providing unwavering assistance to every Canadian affected by these conditions. We strive to deliver resources, educational initiatives, and comprehensive support to communities, healthcare teams, and families impacted by these diseases. We believe in forging a well-informed, empathetic community that can truly comprehend and empathize with the struggles associated with these complex conditions.

We stand firm in our commitment that "No One Walks Alone." In every step of this journey, we are here to share the load, provide a guiding hand, and foster a supportive network that ensures no one feels isolated or unsupported. We are the embodiment of solidarity, and in our pursuit of making a difference, we strive to bring light to the shadows of Atypical Parkinsonism in Canada.

No One Walks Alone!

 

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