Atypical Parkinsonism Resource Links

Great Resources for PSP ~ CBD ~ MSA

Tons of great resources and information all in one place!

Click their logo to go to their websites! 

 




Through An Extremely Generous Donation from The Rossy Family Foundation, The Rossy Progressive Supranuclear Palsy Centre Has Been Created to Tackle Progressive Supranuclear Palsy and Similar Conditions.

 

CurePSP is the leading source of information and support for prime of life neurodegenerative diseases, including PSP, CBD, MSA, ALS, CTE and FTD.

 

PSPA

PSPA is a national charity providing support and information to people living with PSP and CBD while funding research into treatments and ultimately a cure.

 

Parkinson Canada

Since 1965, Parkinson Canada has worked to provide support services and education to people living with Parkinson’s disease including PSP/MSA/CBD, their families, and the health care professionals who treat them.

 

The Michael J. Fox Foundation is dedicated to finding a cure for Parkinson's disease through an aggressively funded research agenda and to ensuring the development of improved therapies for those living with Parkinson's today.

 

The Krembil Brain Institute at Toronto Western Hospital (UHN) is home to​ one of the world’s largest and most comprehensive teams of physicians and scientists uniquely working hand-in-hand to prevent and confront problems of the brain and spine.

 

NORDIf you live with a rare disease, or love someone who does, NORD is here to help you. For more than 30 years, we have been providing services for patients and their families, rare disease patient organizations, medical professionals, and those seeking to develop new diagnostics and treatments.

 

NINDS

PSP is one of the diseases being studied as part of the NINDS Parkinson's Disease Biomarkers Program, which aims to discover ways to identify individuals at risk for developing Parkinson's and related disorders, and to track disease progression.

 

Mayo Clinic

Every year, more than a million people come to Mayo Clinic for care. Our highly specialized experts are deeply experienced in treating rare and complex conditions.

 online support groups PSP

Online Support Groups by CurePSP

Check out these online support groups offered by CurePSP.  Attend them from the comfort of your home at your convenience!

The Coleen Cunningham Foundation serves individuals and families dealing with Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA) and Corticobasal Degeneration (CBD).

Our Non Profit Foundation Board is composed of volunteers who each have a personal connection to Atypical Parkinsonism. Having experienced the frustration first hand and felt by so many families affected by Atypical Parkinsonism (difficulty getting a diagnosis, healthcare teams unfamiliar with the diseases, lack of information and support in the community) We are passionate about not wanting another family in Canada to face the same challenges. Our aim is to become a National Charity serving all Canadians affected by PSP, MSA and CBD. 

No One Walks Alone!

                                                  

         
#AD