Atypical Parkinsonism Blog

Many New Blog Posts Each Week

Use the Search Magnifying Glass at the Top to Search All Blog Posts.

Atypical Parkinsonism Blog by: Laura Louizos

Remembering Rev. Jesse Jackson: A Warrior’s Fight Against PSP

Remembering Rev. Jesse Jackson: A Warrior’s Fig...

We at CCF for PSP Awareness are deeply saddened by the passing of Rev. Jesse Jackson, civil rights pioneer, at age 84 on February 17, 2026, in Chicago.  His death...

Remembering Rev. Jesse Jackson: A Warrior’s Fig...

We at CCF for PSP Awareness are deeply saddened by the passing of Rev. Jesse Jackson, civil rights pioneer, at age 84 on February 17, 2026, in Chicago.  His death...

🥯 Bagel Fundraiser

🥯 Bagel Fundraiser

JOIN THE COLEEN CUNNINGHAM FOUNDATION 🥯 Bagel Fundraiser FOR THE BENEFIT OF THOSE WITHAtypical Parkinson Diseases NOVEMBER 2ND • 11-1 PM AT THE ROCKVILLE JCC IN PARTNERSHIP WITH BETHESDA BAGELS

1 comment

🥯 Bagel Fundraiser

JOIN THE COLEEN CUNNINGHAM FOUNDATION 🥯 Bagel Fundraiser FOR THE BENEFIT OF THOSE WITHAtypical Parkinson Diseases NOVEMBER 2ND • 11-1 PM AT THE ROCKVILLE JCC IN PARTNERSHIP WITH BETHESDA BAGELS

1 comment
HOPE by Bhavna

HOPE by Bhavna

Remember the first timerobins sang in your garden,their delicate bodies pulsing with song,their hearts daring to rise, like yours.How the moon spilled its silver over your window,and your mother said,...

HOPE by Bhavna

Remember the first timerobins sang in your garden,their delicate bodies pulsing with song,their hearts daring to rise, like yours.How the moon spilled its silver over your window,and your mother said,...

Active Neurodegenerative Disease Clinical Trials (PSP, MSA, DLB, CBS, Parkinsonian Syndromes)

Active Neurodegenerative Disease Clinical Trial...

Progressive Supranuclear Palsy (PSP) Trials ClinicalTrials.gov ID: NCT06355531 – PROSPERPurpose: To evaluate whether FNP-223 slows disease progression in PSP, using the PSP Rating Scale (PSPRS) over 52 weeks. The trial also...

2 comments

Active Neurodegenerative Disease Clinical Trial...

Progressive Supranuclear Palsy (PSP) Trials ClinicalTrials.gov ID: NCT06355531 – PROSPERPurpose: To evaluate whether FNP-223 slows disease progression in PSP, using the PSP Rating Scale (PSPRS) over 52 weeks. The trial also...

2 comments
Recruiting participants for a groundbreaking study: “Assessing Cognitive Trajectories in Progressive Supranuclear Palsy Using Remote Computerized Reaction Time Tasks.”

Recruiting participants for a groundbreaking st...

Melbourne, Victoria – September 9, 2025 – The CCF Coleen Cunningham Foundation is partnering with researchers at the Alfred Hospital and Monash University to recruit participants for a groundbreaking study:...

1 comment

Recruiting participants for a groundbreaking st...

Melbourne, Victoria – September 9, 2025 – The CCF Coleen Cunningham Foundation is partnering with researchers at the Alfred Hospital and Monash University to recruit participants for a groundbreaking study:...

1 comment
WAITING By Bhavna

WAITING By Bhavna

For four years, she had lived with the unraveling of a rare brain disease. Progressive Supranuclear Palsy. Each step making her more dependent. Each fall more brutal. And each word...

3 comments

WAITING By Bhavna

For four years, she had lived with the unraveling of a rare brain disease. Progressive Supranuclear Palsy. Each step making her more dependent. Each fall more brutal. And each word...

3 comments

Laura Louizos, Blog Author

Laura Louizos is a blogger, advocate, and founder of the Coleen Cunningham Foundation (CCF), raising awareness for atypical Parkinsonism, including PSP. Inspired by her mother’s 2018 PSP diagnosis, Laura shares her caregiver journey—struggles, triumphs, and insights—while offering resources and tips for living with neurodegenerative diseases. Her candid, inspiring blog supports a global community. Passionate and dedicated, Laura amplifies understanding and hope for those affected.

Visit the Resource Library for Helpful Books!