Progressive Supranuclear Palsy Blog

  • Not sure if you should attend a local support group?

    Thanks for sharing Larry Linton 🙏❤️ “It took me ten years, but this week I attended my very first support group. I wished I had joined earlier. As ...
  • Advanced Parkinson’s Therapies Presentation FEB 14 2020 1-3pm

    Please join Parkinson Canada for an afternoon with Yu-Yan Poon who will provide an informative and engaging presentation about Advanced Parkinson’s...
  • Q. Do your loved ones become more demanding? It's Exhausting!

    Yes this disease seems to do this. My mom became impatient (she wasn't before)   My Dad and I laughed when ever mom would finish her meal and tell ...
  • How much info is too much?

    My Mom knew most, she would tell me she didn’t want to know or talk about it....But she would always ask me questions and if she wanted to know som...
  • Favourite food, alcoholic drink or guilty pleasure?!

    When it comes to their favourite food, alcoholic drink or guilty pleasure who are we to stop it as long as there is no direct negative effect or pa...
  • Is there a Timeline with PSP? Can things speed it up?

    So many factors can play apart in timeline. Some are slower progression and others can be very rapid. My mom we figure showed symptoms for a few ye...
  • Why does it take so long to get a diagnosis for PSP?

    PSP is a clinical diagnosis and can only be officially confirmed after an autopsy.  This makes it hard along with how rare and little is known abou...
  • Dementia and PSP?! “Like Dementia, But Not Dementia”

    My mom would mix up her days sometimes and call people to reschedule thinking she was late or double book. Planning becomes an issue as the brain s...
  • Moving, Stairs, Falls...

    If possible to always have someone nearby seems to be the best prevention of falls.
  • 6 months ago.

    It was 6 months ago that I woke up and you did not 😢 💔 I miss you so much Mom and still can’t believe you are gone. I am grateful for all the memor...
  • How do you gauge the progression and timeline with PSP? Can something make it worse?

    It’s so tough to gauge.
  • Does it matter PSP, CBD, MSA?

    It does matter for research purposes and to try and better understand these diseases.