Atypical Parkinsonism Blog
Many New Blog Posts Each Week
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Atypical Parkinsonism Blog by: Laura Louizos
HOPE by Bhavna
Remember the first timerobins sang in your garden,their delicate bodies pulsing with song,their hearts daring to rise, like yours.How the moon spilled its silver over your window,and your mother said,...
HOPE by Bhavna
Remember the first timerobins sang in your garden,their delicate bodies pulsing with song,their hearts daring to rise, like yours.How the moon spilled its silver over your window,and your mother said,...
Active Neurodegenerative Disease Clinical Trial...
Progressive Supranuclear Palsy (PSP) Trials ClinicalTrials.gov ID: NCT06355531 – PROSPERPurpose: To evaluate whether FNP-223 slows disease progression in PSP, using the PSP Rating Scale (PSPRS) over 52 weeks. The trial also...
Active Neurodegenerative Disease Clinical Trial...
Progressive Supranuclear Palsy (PSP) Trials ClinicalTrials.gov ID: NCT06355531 – PROSPERPurpose: To evaluate whether FNP-223 slows disease progression in PSP, using the PSP Rating Scale (PSPRS) over 52 weeks. The trial also...
Recruiting participants for a groundbreaking st...
Melbourne, Victoria – September 9, 2025 – The CCF Coleen Cunningham Foundation is partnering with researchers at the Alfred Hospital and Monash University to recruit participants for a groundbreaking study:...
Recruiting participants for a groundbreaking st...
Melbourne, Victoria – September 9, 2025 – The CCF Coleen Cunningham Foundation is partnering with researchers at the Alfred Hospital and Monash University to recruit participants for a groundbreaking study:...
WAITING By Bhavna
For four years, she had lived with the unraveling of a rare brain disease. Progressive Supranuclear Palsy. Each step making her more dependent. Each fall more brutal. And each word...
WAITING By Bhavna
For four years, she had lived with the unraveling of a rare brain disease. Progressive Supranuclear Palsy. Each step making her more dependent. Each fall more brutal. And each word...
“Handling it well”
“You handled it so well.” Those words sting, a hollow echo far from my truth. I didn’t handle it. I unraveled, spiraling into the chaos of my own heart. My...
“Handling it well”
“You handled it so well.” Those words sting, a hollow echo far from my truth. I didn’t handle it. I unraveled, spiraling into the chaos of my own heart. My...
Register Today - Tickets Going Fast! May 3rd in...
Time’s ticking to register for our FREE Awareness Walk Starting at The Hub in Burlington Centre! Over 50 of you are already in, and the first 100 to sign up...
Register Today - Tickets Going Fast! May 3rd in...
Time’s ticking to register for our FREE Awareness Walk Starting at The Hub in Burlington Centre! Over 50 of you are already in, and the first 100 to sign up...
Laura Louizos, Blog Author
Laura Louizos is a blogger, advocate, and founder of the Coleen Cunningham Foundation (CCF), raising awareness for atypical Parkinsonism, including PSP. Inspired by her mother’s 2018 PSP diagnosis, Laura shares her caregiver journey—struggles, triumphs, and insights—while offering resources and tips for living with neurodegenerative diseases. Her candid, inspiring blog supports a global community. Passionate and dedicated, Laura amplifies understanding and hope for those affected.
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