Melbourne, Victoria – September 9, 2025 – The CCF Coleen Cunningham Foundation is partnering with researchers at the Alfred Hospital and Monash University to recruit participants for a groundbreaking study: “Assessing Cognitive Trajectories in Progressive Supranuclear Palsy Using Remote Computerized Reaction Time Tasks.”
This innovative research evaluates computerized cognitive testing to detect decline in Progressive Supranuclear Palsy (PSP) more effectively than traditional pen-and-paper methods. The study aims to map individual cognitive trajectories in PSP patients, enhancing future research and clinical trials for investigational treatments.
Study Involvement:
• Two in-person visits (90 minutes each) at Alfred Hospital or Monash University (99 Commercial Road, Melbourne, VIC): history, physical exam, and cognitive assessment.
• Home-based testing every 2 months for 12 months on a smart device (10-12 minutes per session).
• Quality-of-life questionnaires.
Eligibility:
• Neurologist-diagnosed PSP.
• Age 40+.
• Available for two assessments 12 months apart.
• English proficiency for consent and activities.
• Reliable smart device with internet; willing to register on secure platform.
• No other major neurological/psychiatric conditions.
Interested PSP patients or caregivers: Contact Dr. Timothy Siejka at t.siejka@alfred.org.au or 0418 347 620.
Ethics approved by Alfred Human Research and Ethics Committee (413/25).
The CCF Coleen Cunningham Foundation supports this vital PSP research to advance patient care and outcomes.
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