Tim Brown - PSP Warrior and Advocate
We are honored to present our distinguished Support Group Facilitator, a notable PSP warrior and leader. His fervor for raising awareness is unparalleled. Immerse yourself in his story, glean wisdom from his vast experience, and discover direction for your personal journey.
Be prepared for conversations that are raw, unfiltered, and deeply heartfelt.
Thursday Meetings are open to All; Caregivers, Individuals, Healthcare Workers and Loved Ones On The Journey Now! Everyone is Welcome across the Globe! We have guest from Canada, USA, Australia, United Kingdom, India and more!
| PREVIOUS TIM TALKS RECORDINGS |
| May 30th, 2024 Speaker - Tim Brown (Awareness Month)Â View Recording |
| April 25th, 2024Â Speaker - Tim Brown (Tim Talks) View Recording Part 1 & 2 |
| March 28th, 2024 Speaker - Tim Brown (Tim Talks) View Recording |
| February 29th, 2024Â Open Discussion - (Rare Disease Day) |
| January 25th, 2024 Speaker - Tim Brown (Tim Talks) View Recording |
| December 28th, 2023 Speaker - No Meeting (Holiday) |
| November 30th, 2023Â Speaker - Tim Brown (Tim Talks) View Recording |
| October 26th, 2023Â Speaker - Tim Brown (Tim Talks) View Recording |
Tim Brown - Author of The PSP Chronicles
The author invites readers to follow him along on his personal journey with dementia and a rare, terminal brain disease - Progressive Supranuclear Palsy or PSP. No treatment, and no cure. Experience the real life struggles, the joys, the sorrows and his unshakable faith. It is the story of a life — well lived despite the limitations imposed by PSP. It’s a ray of hope where not much hope can be found. His book is a lesson, live your life with grace, bravery and fortitude. His sheer strength and humour in dealing with this cruel disease shines through, while trying and succeeding to provide a legacy of research, awareness and hopefully one day a cure for PSP and all neurodegenerative disease. The narrative is delivered as is and written for readers at all levels and perhaps identify with. A true testament of human endurance in the face of adversity.
The PSP Chronicles Paperback – July 17, 2018
The PSP Chronicles Volume II: Keep On, Keeping On Paperback – December 26, 2019
The PSP Chronicles Volume III: Putting Purpose To PSP Kindle Edition – Sept. 19 2021
The PSP Chronicles Volume IV: Beyond... The PSP Chronicles Paperback – June 3 2024#Sponsored
About Us:Â
The Coleen Cunningham Foundation serves individuals and families dealing with Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA) and Corticobasal Degeneration (CBD).
Mission
The Coleen Cunningham Foundation (CCF) is dedicated to honoring the legacy of Coleen Cunningham by providing comprehensive support to individuals and families affected by Atypical Parkinsonism. Our mission is to improve the quality of life for those impacted by these rare neurological disorders through compassionate care, advocacy, and education. We strive to foster a supportive community, offer respite and hospice care, and advance the understanding and management of Atypical Parkinsonism.
Objectives
1. Provide Compassionate Respite and Hospice Care
- Respite Vacations: Offer families affected by Atypical Parkinsonism the opportunity to create cherished memories through specially designed respite vacations.
- Respite Hospice in the Caribbean: Establish a dedicated hospice facility in the Caribbean that provides comprehensive care and relaxation for families, ensuring a serene environment for both patients and caregivers.
2. Support and Empower Families and Caregivers
- Support Groups: Facilitate regular support group meetings to provide emotional and practical support for caregivers, patients, and families.
- Educational Resources: Develop and distribute educational materials to help families and caregivers understand and manage the complexities of Atypical Parkinsonism.
- Advocacy: Advocate for the needs and rights of those affected by Atypical Parkinsonism at both the local and national levels.
3. Advance Medical Understanding and Management
- Collaborative Research: Partner with medical institutions and researchers to support studies aimed at understanding Atypical Parkinsonism and developing effective treatments.
- Medical Insights and Training: Provide healthcare professionals with the latest insights and training on Atypical Parkinsonism to improve patient care.
4. Promote Awareness and Education
- Public Awareness Campaigns: Conduct campaigns to raise public awareness about Atypical Parkinsonism and the challenges faced by those affected.
- Educational Events: Host seminars, webinars, and workshops to educate the public, healthcare professionals, and policymakers about Atypical Parkinsonism.
5. Foster a Supportive Community
- Online Community Platform: Create and maintain an online platform where individuals and families can share experiences, find support, and access resources.
- Engage with Stakeholders: Build partnerships with organizations, companies, and individuals dedicated to supporting neurological disorders to enhance our outreach and impact.
6. Expand Global Reach
- International Collaboration: Work with international partners to share knowledge, resources, and best practices in the care and management of Atypical Parkinsonism.
- Resource Distribution: Ensure that educational and support materials are accessible to a global audience, reaching as many affected individuals and families as possible.
Commitment to Excellence
At the Coleen Cunningham Foundation, we are committed to excellence in all our endeavors. We pledge to uphold the highest standards of care, compassion, and professionalism in our services, ensuring that every individual and family we support receives the best possible assistance and guidance.
Together, we can navigate the challenges of Atypical Parkinsonism, creating a brighter future for those affected by this condition.
No One Walks Alone!
Laura Louizos
Executive Director
Coleen Cunningham Foundation for
PSP Awareness