Your Voice

"My 58-year-old son’s neurologist suspects PSP or frontotemporal dementia. His quiet voice and poor balance suggest PSP. Levodopa hasn’t helped."

"My father, a retired physician, is in the last stages of PSP, battling sepsis and hallucinations in the hospital. Caregiving through stages 2-4 has been tough."

"My wife’s PSP began with imbalance and eye flickers. Short-term memory is gone, but we cherish her blessings. Simple yes/no questions work best."

"My 67-year-old mother-in-law with PSP is on a ventilator due to lung infection. Her oxygen is at 45%. Seeking guidance on what to expect."

"My wife passed from PSP in 2011 after shock treatments for bipolar depression in 2009-2010. I wonder if they triggered it."

"Diagnosed with PSP at Mayo Clinic, I manage at home with my husband’s help. Balance and bowels are issues. Anyone else with constipation?"

"My mom died of PSP, my sister of Parkinson’s. Are they related?"

"My husband has PSP, and caregiving is devastating. This info helps—thank you."

"My mom’s PSP was mistaken for a stroke. She stayed sharp, unlike my sister now in late-stage PSP. It’s horrible."

"Struggling alone with my husband’s PSP and advancing dementia. This info is helpful as we consider palliative care."

"As a carer, knowing the PSP journey is essential. Thank you."

"How often is PSP misdiagnosed as dementia? Are siblings at risk?"

"I’m 84 and facing PSP. I didn’t want this, but the info here helps."

"Caring for my husband with PSP—this info is appreciated."

"My ex-husband has PSP, likely 2-3 years in based on symptoms."

"My father fought PSP from 2011-2019, passing after pneumonia. Caregiving was tough, but we loved him through it."

"I might have PSP with falls forward. Symptoms differ slightly."

"As a carer, this info helps me understand PSP’s progression. Thank you."

"I’m a carer—thank you for this."

"As a carer, I found this PSP info very useful."

"Thank you for all you do."