Online Support Groups By CurePSP
Online Support Groups
CurePSP sponsors online support groups for those affected by PSP, CBD, MSA, and related diseases, offering camaraderie via computer or phone. Screen-sharing enhances sessions with visual aids.
To Join: Register via the group’s link, join at the scheduled time using your computer or dial-in. Contact facilitators for details or email info@curepsp.org for support questions.
PSP/CBD 101: For the Newly Diagnosed
Times: Dec 1-3, 7:30-8:45pm EST
Register: Zoom Link
Facilitator: Nancy Frehill, frehillnancy@gmail.com
People with PSP/MSA/CBD & Carepartners
Times: 3rd Thu, 3:00-4:30pm EST
Register: Zoom Link
Tel: +1 646 558 8656, ID: 850 7745 0341
Facilitators: Gregg Felice, felice@curepsp.org; Jessica Shurer, jshurer@neurology.unc.edu
Carepartners of PSP/MSA/CBD
Times: 2nd Thu, 3:00-4:30pm EST
Register: Zoom Link
Tel: +1 646 558 8656, ID: 842 6151 1733
Facilitators: Gregg Felice, felice@curepsp.org; Ileen McFarland, ileen@earthlink.net
(Women Only) Carepartners of PSP/MSA/CBD
Times: 1st Thu, 2:30-3:30pm EST
Register: Zoom Link
Tel: +1 646 558 8656, ID: 865 0612 9819
Facilitators: Nancy Montgomery, njmont76@gmail.com; Janis Appel, jappel1130@gmail.com
(Men Only) Carepartners of PSP/MSA/CBD
Times: 1st Tue, 8:00-9:00pm EST (Nov 4th for Nov)
Register: Zoom Link
Tel: +1 646 558 8656, ID: 865 1420 0051
Facilitators: Tom Tait, tom.tait@comcast.net; Bill Furlow, billfurlownc@gmail.com
People with PSP
Times: 2nd & 4th Mon, 7:30-8:30pm EST
Register: Zoom Link
Tel: +1 646 558 8656, ID: 814 6632 5071
Facilitator: Martha Kenney, martha.kenney75@gmail.com
Carepartners of People with PSP
Times: 3rd Tue, 8:00pm EST
Register: GoToWebinar Link
Tel: 914-339-0024, Code: 753-354-191
Facilitator: Janet Edmunson, 207-799-4963, janet@janetedmunson.com
People with CBD
Times: 1st Tue, 6:00pm EST
Register: GoToWebinar Link
Tel: (213) 929-4232, Code: 611-128-331
Facilitator: Karry Forsythe, 903-683-0010, forsythe76@gmail.com
People with CBD & Carepartners
Times: 3rd Tue, 4:00pm EST
Register: GoToWebinar Link
Tel: 312-878-0222, Code: 602-587-662
Facilitator: Janet Edmunson, 207-799-4963, janet@janetedmunson.com
People with MSA
Times: 3rd Mon, 8:00pm EST
Register: GoToWebinar Link
Tel: (914) 614-3221, Code: 500-058-061
Facilitator: Cathy Chapman, 307-332-4144, cec@wyoming.com
Carepartners of People with MSA
Times: 1st Mon, 8:00-9:00pm EST
Register: GoToWebinar Link
Tel: (415) 655-0060, Code: 950-759-636
Facilitator: Tom Tait, 856-725-2450, tom.tait@comcast.net
Adult Children of People with PSP
Times: 2nd Wed, 8:00pm EST
Register: GoToWebinar Link
Tel: (631) 992-3221, Code: 800-832-853
Facilitator: Laurie Spindler, LaurieSHuffman@gmail.com
Carepartners Dealing with Advanced PSP
Times: 4th Wed, 7:00-8:00pm EST
Register: GoToWebinar Link
Tel: 951-266-6124, Code: 289-328-424
Facilitator: Steve Garcia, 973-962-9356, advancedstagespsp@gmail.com
After The Loss: Bereavement Support
Times: 3rd Tue, 2:00pm EST
Register: Zoom Link
Tel: +1 646 558 8656, ID: 880 1661 4170
Facilitators: Gregg Felice, felice@curepsp.org; Meghan Sweeney, meghansweeney1@gmail.com
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