PSP BLOG

Many New Blog Posts Every Week

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Progressive Supranuclear Palsy PSP Blog by Laura Louizos, Since 2018

The International Dysphagia Diet Standardisation Initiative (IDDSI)

The International Dysphagia Diet Standardisatio...

IDDSI has created handouts in consultation with clinicians and patients. The handouts can be used by people who have feeding, chewing or swallowing problems, their caregivers and clinicians. There are separate handouts...

The International Dysphagia Diet Standardisatio...

IDDSI has created handouts in consultation with clinicians and patients. The handouts can be used by people who have feeding, chewing or swallowing problems, their caregivers and clinicians. There are separate handouts...

Treatment of Disturbed Sleep in PSP

Treatment of Disturbed Sleep in PSP

FEATURED STUDY: Treatment of Disturbed Sleep in PSP The Treatment of Disturbed Sleep in persons with Progressive Supranuclear Palsy (PSP) is a remote, six-week clinical trial sponsored by the University...

Treatment of Disturbed Sleep in PSP

FEATURED STUDY: Treatment of Disturbed Sleep in PSP The Treatment of Disturbed Sleep in persons with Progressive Supranuclear Palsy (PSP) is a remote, six-week clinical trial sponsored by the University...

Four electrodes placed in brain of patient with PSP disease

Mumbai doctors perform rare brain surgery in PSP

Four electrodes placed in brain of patient with PSP syndrome during six-hour-long procedure. In a first, doctors at Mumbai’s Jaslok Hospital recently performed a deep brain simulation (DBS) surgery by...

1 comment

Mumbai doctors perform rare brain surgery in PSP

Four electrodes placed in brain of patient with PSP syndrome during six-hour-long procedure. In a first, doctors at Mumbai’s Jaslok Hospital recently performed a deep brain simulation (DBS) surgery by...

1 comment
Do hands and feet curl and become stiff?

Do hands and feet curl and become stiff?

Image Credit; Michael J Fox Foundation Yes it’s a symptom of the disease and it’s called Dystonia. Dystonia is a movement disorder in which a person's muscles contract uncontrollably. The...

Do hands and feet curl and become stiff?

Image Credit; Michael J Fox Foundation Yes it’s a symptom of the disease and it’s called Dystonia. Dystonia is a movement disorder in which a person's muscles contract uncontrollably. The...

Falls and Atypical Parkinsonism

The Falls and Frustrations of PSP

Written by Matthew J. Barrett, an associate professor of neurology and a movement disorder specialist at Virginia Commonwealth University in Richmond, Virginia. I often repeat her presentation to medical students: my...

The Falls and Frustrations of PSP

Written by Matthew J. Barrett, an associate professor of neurology and a movement disorder specialist at Virginia Commonwealth University in Richmond, Virginia. I often repeat her presentation to medical students: my...

Rare Disease PSP, MSA, CBD

Do you think PSP/MSA/CBD are as rare as they say?

By: Laura Louizos The diagnosis is only a clinical diagnosis. The only way to officially confirm PSP, MSA or CBD is an autopsy. (This is why Brain donation is so...

2 comments

Do you think PSP/MSA/CBD are as rare as they say?

By: Laura Louizos The diagnosis is only a clinical diagnosis. The only way to officially confirm PSP, MSA or CBD is an autopsy. (This is why Brain donation is so...

2 comments

Laura Louizos, Blog Author

Laura Louizos is a blogger and advocate for PSP (Progressive Supranuclear Palsy) and Founder of CCF for PSP Awareness.

PSP is a rare and debilitating neurological disorder that affects movement, balance, vision, speech, and cognitive function. Laura's mother was diagnosed with PSP in 2018, and since then, Laura has been dedicated to raising awareness about the disease and providing support to others affected by it.

Through our blog, Laura shares her personal journey as a caregiver, including her struggles, triumphs, and insights. She also provides resources and information about the disease, as well as tips and advice for living with PSP. Laura's writing is candid, inspiring, and informative, and her blog has become an important resource for the PSP community.

Laura is a passionate advocate for PSP awareness, and she works tirelessly to increase understanding and support for those affected by the disease. Her blog is a testament to her dedication and commitment to improving the lives of those with PSP, and she is a valuable voice in the fight against this devastating condition.