PSP BLOG
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Progressive Supranuclear Palsy PSP Blog by Laura Louizos, Since 2018
The Falls and Frustrations of PSP
Written by Matthew J. Barrett, an associate professor of neurology and a movement disorder specialist at Virginia Commonwealth University in Richmond, Virginia. I often repeat her presentation to medical students: my...
The Falls and Frustrations of PSP
Written by Matthew J. Barrett, an associate professor of neurology and a movement disorder specialist at Virginia Commonwealth University in Richmond, Virginia. I often repeat her presentation to medical students: my...
US FDA Grants Orphan Drug Designation for RT001
US FDA Grants Orphan Drug Designation for Retrotope’s RT001 in the Treatment of Progressive SupraNuclear Palsy (PSP). LOS ALTOS, CALIF, February 18, 2020– Retrotope announced today that the U.S. Food...
US FDA Grants Orphan Drug Designation for RT001
US FDA Grants Orphan Drug Designation for Retrotope’s RT001 in the Treatment of Progressive SupraNuclear Palsy (PSP). LOS ALTOS, CALIF, February 18, 2020– Retrotope announced today that the U.S. Food...
Do you think PSP/MSA/CBD are as rare as they say?
By: Laura Louizos The diagnosis is only a clinical diagnosis. The only way to officially confirm PSP, MSA or CBD is an autopsy. (This is why Brain donation is so...
Do you think PSP/MSA/CBD are as rare as they say?
By: Laura Louizos The diagnosis is only a clinical diagnosis. The only way to officially confirm PSP, MSA or CBD is an autopsy. (This is why Brain donation is so...
Have you thought about Advanced Care Planning?
Canadian Hospice Palliative Care Association Releases New Resources to Support the Legal Processes of Advance Care Planning (ACP) in Canada IT’S ABOUT CONVERSATIONS. IT’S ABOUT WISHES. IT’S HOW WE CARE...
Have you thought about Advanced Care Planning?
Canadian Hospice Palliative Care Association Releases New Resources to Support the Legal Processes of Advance Care Planning (ACP) in Canada IT’S ABOUT CONVERSATIONS. IT’S ABOUT WISHES. IT’S HOW WE CARE...
Are you undiagnosed or misdiagnosed?
Has you or your loved one been misdiagnosed or undiagnosed and you are searching for answers? Has PSP, MSA or CBD been mentioned? It might be helpful to mention PSP/MSA/CBD,...
Are you undiagnosed or misdiagnosed?
Has you or your loved one been misdiagnosed or undiagnosed and you are searching for answers? Has PSP, MSA or CBD been mentioned? It might be helpful to mention PSP/MSA/CBD,...
Do you take Levodopa or other time sensitive meds
Parkinson's Canada has launched a great resource and program to help healthcare providers and care facilities understand the importance of patients receiving specific medications on time every time! If you...
Do you take Levodopa or other time sensitive meds
Parkinson's Canada has launched a great resource and program to help healthcare providers and care facilities understand the importance of patients receiving specific medications on time every time! If you...
Laura Louizos, Blog Author
Laura Louizos is a blogger and advocate for PSP (Progressive Supranuclear Palsy) and Founder of CCF for PSP Awareness.
PSP is a rare and debilitating neurological disorder that affects movement, balance, vision, speech, and cognitive function. Laura's mother was diagnosed with PSP in 2018, and since then, Laura has been dedicated to raising awareness about the disease and providing support to others affected by it.
Through our blog, Laura shares her personal journey as a caregiver, including her struggles, triumphs, and insights. She also provides resources and information about the disease, as well as tips and advice for living with PSP. Laura's writing is candid, inspiring, and informative, and her blog has become an important resource for the PSP community.
Laura is a passionate advocate for PSP awareness, and she works tirelessly to increase understanding and support for those affected by the disease. Her blog is a testament to her dedication and commitment to improving the lives of those with PSP, and she is a valuable voice in the fight against this devastating condition.