Atypical Parkinsonism Blog

Many New Blog Posts Each Week

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Atypical Parkinsonism Blog by: Laura Louizos

The Power of Support Groups for Caregivers of PSP Loved Ones

The Power of Support Groups for Caregivers of P...

Progressive supranuclear palsy (PSP) is a rare neurological disorder that remains, unfortunately, lesser known in the medical community. While professionals continue to unravel its intricacies, caregivers are often left to...

7 comments

The Power of Support Groups for Caregivers of P...

Progressive supranuclear palsy (PSP) is a rare neurological disorder that remains, unfortunately, lesser known in the medical community. While professionals continue to unravel its intricacies, caregivers are often left to...

7 comments
🌟 Reminder: Support Group Meeting Tonight! 🌟

🌟 Reminder: Support Group Meeting Tonight! 🌟

Hey everyone,Don't forget about our Zoom Support Group meeting from 7-9pm ET this evening! Just a click away, you can join us right from the comfort of your home.🔗 Message...

2 comments

🌟 Reminder: Support Group Meeting Tonight! 🌟

Hey everyone,Don't forget about our Zoom Support Group meeting from 7-9pm ET this evening! Just a click away, you can join us right from the comfort of your home.🔗 Message...

2 comments
Patience and Empathy: Understanding PSP and Its Impact on Behaviour

Patience and Empathy: Understanding PSP and Its...

Living with or caring for someone with Progressive Supranuclear Palsy (PSP) is a journey that can be both emotionally and physically demanding. PSP, a neurodegenerative disease, not only affects movement...

2 comments

Patience and Empathy: Understanding PSP and Its...

Living with or caring for someone with Progressive Supranuclear Palsy (PSP) is a journey that can be both emotionally and physically demanding. PSP, a neurodegenerative disease, not only affects movement...

2 comments
The Vital Role of Self-Care for Caregivers

The Vital Role of Self-Care for Caregivers

Taking time for oneself and practicing self-care is crucial, especially for caregivers. Here's a concise reflection on its importance: The Vital Role of Self-Care for CaregiversCaregivers play an immeasurable role...

The Vital Role of Self-Care for Caregivers

Taking time for oneself and practicing self-care is crucial, especially for caregivers. Here's a concise reflection on its importance: The Vital Role of Self-Care for CaregiversCaregivers play an immeasurable role...

The Pillars of Support: PSP and Hospice Care

The Pillars of Support: PSP and Hospice Care

When the term "hospice care" comes to mind, many often mistakenly associate it solely with the end of life. While it's true that hospice care can be a crucial aid...

4 comments

The Pillars of Support: PSP and Hospice Care

When the term "hospice care" comes to mind, many often mistakenly associate it solely with the end of life. While it's true that hospice care can be a crucial aid...

4 comments
Navigating Clinical Trials for Progressive Supranuclear Palsy: Current Enrolment Opportunities

Navigating Clinical Trials for Progressive Supr...

Navigating clinical trials for Progressive Supranuclear Palsy (PSP) can be a complex process, but online platforms like ClinicalTrials.gov provide an accessible avenue. Clinical trials are research studies aiming to evaluate...

Navigating Clinical Trials for Progressive Supr...

Navigating clinical trials for Progressive Supranuclear Palsy (PSP) can be a complex process, but online platforms like ClinicalTrials.gov provide an accessible avenue. Clinical trials are research studies aiming to evaluate...

Laura Louizos, Blog Author

Laura Louizos is a blogger, advocate, and founder of the Coleen Cunningham Foundation (CCF), raising awareness for atypical Parkinsonism, including PSP. Inspired by her mother’s 2018 PSP diagnosis, Laura shares her caregiver journey—struggles, triumphs, and insights—while offering resources and tips for living with neurodegenerative diseases. Her candid, inspiring blog supports a global community. Passionate and dedicated, Laura amplifies understanding and hope for those affected.

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