PSP BLOG
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Progressive Supranuclear Palsy PSP Blog by Laura Louizos, Since 2018
Do hands and feet curl and become stiff?
Image Credit; Michael J Fox Foundation Yes it’s a symptom of the disease and it’s called Dystonia. Dystonia is a movement disorder in which a person's muscles contract uncontrollably. The...
Do hands and feet curl and become stiff?
Image Credit; Michael J Fox Foundation Yes it’s a symptom of the disease and it’s called Dystonia. Dystonia is a movement disorder in which a person's muscles contract uncontrollably. The...
Canadian Tax Help for Disabled Individuals
Canadian disability tax credit! Have you applied? It can help with those extra medical expenses.Once you apply and are approved you are able to claim it each year and do...
Canadian Tax Help for Disabled Individuals
Canadian disability tax credit! Have you applied? It can help with those extra medical expenses.Once you apply and are approved you are able to claim it each year and do...
CORD presents Rare Disease Drug Strategy Webinars
PMPRB: Friend or Foe of Rare Disease Drug Strategy In February 2019 the federal government committed $1billion over two years starting in 2022 to set up a Canadian Rare Disease...
CORD presents Rare Disease Drug Strategy Webinars
PMPRB: Friend or Foe of Rare Disease Drug Strategy In February 2019 the federal government committed $1billion over two years starting in 2022 to set up a Canadian Rare Disease...
Association of Stress-Related Disorders
Association of Stress-Related Disorders With Subsequent Neurodegenerative Diseases By: Huan Song, MD, PhD; Johanna Sieurin, MSc; Karin Wirdefeldt, MD, PhD Original Investigation | March 9, 2020 Key Points Question Do...
Association of Stress-Related Disorders
Association of Stress-Related Disorders With Subsequent Neurodegenerative Diseases By: Huan Song, MD, PhD; Johanna Sieurin, MSc; Karin Wirdefeldt, MD, PhD Original Investigation | March 9, 2020 Key Points Question Do...
US FDA Grants Orphan Drug Designation for RT001
US FDA Grants Orphan Drug Designation for Retrotope’s RT001 in the Treatment of Progressive SupraNuclear Palsy (PSP). LOS ALTOS, CALIF, February 18, 2020– Retrotope announced today that the U.S. Food...
US FDA Grants Orphan Drug Designation for RT001
US FDA Grants Orphan Drug Designation for Retrotope’s RT001 in the Treatment of Progressive SupraNuclear Palsy (PSP). LOS ALTOS, CALIF, February 18, 2020– Retrotope announced today that the U.S. Food...
Do you think PSP/MSA/CBD are as rare as they say?
By: Laura Louizos The diagnosis is only a clinical diagnosis. The only way to officially confirm PSP, MSA or CBD is an autopsy. (This is why Brain donation is so...
Do you think PSP/MSA/CBD are as rare as they say?
By: Laura Louizos The diagnosis is only a clinical diagnosis. The only way to officially confirm PSP, MSA or CBD is an autopsy. (This is why Brain donation is so...
Laura Louizos, Blog Author
Laura Louizos is a blogger and advocate for PSP (Progressive Supranuclear Palsy) and Founder of CCF for PSP Awareness.
PSP is a rare and debilitating neurological disorder that affects movement, balance, vision, speech, and cognitive function. Laura's mother was diagnosed with PSP in 2018, and since then, Laura has been dedicated to raising awareness about the disease and providing support to others affected by it.
Through our blog, Laura shares her personal journey as a caregiver, including her struggles, triumphs, and insights. She also provides resources and information about the disease, as well as tips and advice for living with PSP. Laura's writing is candid, inspiring, and informative, and her blog has become an important resource for the PSP community.
Laura is a passionate advocate for PSP awareness, and she works tirelessly to increase understanding and support for those affected by the disease. Her blog is a testament to her dedication and commitment to improving the lives of those with PSP, and she is a valuable voice in the fight against this devastating condition.