Who We Are
At the Coleen Cunningham Foundation (CCF), we offer heartfelt support and vital resources to individuals and families facing atypical Parkinsonism. Our mission is to uplift lives through compassionate care—providing respite and hospice grants, support groups, and advocacy. We’re dedicated to building a community that inspires hope, fosters understanding, and strengthens resilience, empowering patients and caregivers to face this journey with dignity and connection.
Useful Information
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Support & Advocacy Committee
LEARN MOREWe aim to educate the public and medical community about atypical parkinsonism, promote early diagnosis, and support research for better treatments and a cure.
Join Us and Make a Difference for PSP, MSA, CBD, DLB!
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Faces & Voices of Atypical Parkinsonism
LEARN MOREShare your personal story with Atypical Parkinsonism, including PSP, MSA, CBD, and DLB, whether you are diagnosed, a caregiver, family member, friend, or medical professional. Together, we can light the path toward understanding and hope.
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On the Journey - Weekly Zoom Support Group
LEARN MOREThis Meeting is open to All; Caregivers, Individuals, Healthcare Workers and Loved Ones.
Every Thursday 7-9 pm ET
Attendees from all across the globe join us for support and to raise awareness.
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Events & Fundraising
VIEW EVENTSCCF hosts and participates in awareness walks and fundraising initiatives to raise funds for Atypical Parkinsonism research and support services, benefiting those with PSP, MSA, CBD, and DLB.
Over $35,000 Raised!
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Library - Understanding Atypical Parkinsonism
VIEW LIBRARYFind the information, support, and inspiration you need to better understand and manage these challenging conditions. Our library includes medical guides, personal memoirs, and practical advice to help patients, caregivers, and families navigate the complexities of Atypical Parkinsonism.
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Atypical Parkinsonism Blog
VIEW BLOGFull of Valuable Resources, Information and Support.
By Laura Louizos, since 2018.
We have hundreds of comments on our blog posts from around the globe that offer valuable insight and support from others on this journey!
Support CCF
Your Donations to CCF support our Programs for Individuals and Families touched by Atypical Parkinsonism. With your donations we are able to offer support and resources to those in need, and make sure No One Walks Alone on this journey.
Donate
Fundraisers
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START TODAYSupport CCF: Unleash Your Fundraising Power with Donorbox
Create a Fundraiser in a Few Steps.
Whether it’s for a special occasion, a personal challenge, or in memory of a loved one, you can set up your own fundraising page in minutes. Once it’s live, simply share the link with your friends, family, and network to start raising funds for CCF. -
SHOP HEREAtypical Parkinsonism Awareness Shop
Welcome to our Atypical Parkinsonism Awareness Shop! We’re here to spark conversations about rare conditions like PSP, MSA, CBD, and DLB through bold, question-provoking tees.
Join us—wear the cause, share the story!
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MORE INFO2026 Global Atypical Parkinsonism Awareness Walk
Get ready to lace up your shoes and join a worldwide movement! CCF is thrilled to announce the 2026 Global Awareness Walk, expanding on our successful annual events to unite communities across the globe in support of PSP and Atypical Parkinsonism (MSA, CBD, and DLB).
Understanding Atypical Parkinsonism
Find the information, support, and inspiration you need to better understand and manage these challenging conditions. Our library includes medical guides, personal memoirs, and practical advice to help patients, caregivers, and families navigate the complexities of PSP, MSA, CBD.
Resources
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Support & Resource Links - Worldwide
WORLDWIDE LINKS -
VieLight - Red Light Therapy
LEARN MORE -
Supports & Resource Links - Canada
CANADIAN LINKS -
Assistive Device Exchange
VIEW LISTINGS -
Tim Talks PSP/CBD Warrior
VIEW RECORDINGS -
Awareness Month Downloads
GET YOURS HERE
Atypical Parkinsonism Blog by: Laura Louizos
View all-
HOPE by Bhavna
Remember the first timerobins sang in your garden,their delicate bodies pulsing with song,their hearts daring to rise, like yours.How the moon spilled its silver over your window,and your mother said,...
HOPE by Bhavna
Remember the first timerobins sang in your garden,their delicate bodies pulsing with song,their hearts daring to rise, like yours.How the moon spilled its silver over your window,and your mother said,...
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Active Neurodegenerative Disease Clinical Trial...
Progressive Supranuclear Palsy (PSP) Trials ClinicalTrials.gov ID: NCT06355531 – PROSPERPurpose: To evaluate whether FNP-223 slows disease progression in PSP, using the PSP Rating Scale (PSPRS) over 52 weeks. The trial also...
Active Neurodegenerative Disease Clinical Trial...
Progressive Supranuclear Palsy (PSP) Trials ClinicalTrials.gov ID: NCT06355531 – PROSPERPurpose: To evaluate whether FNP-223 slows disease progression in PSP, using the PSP Rating Scale (PSPRS) over 52 weeks. The trial also...
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Recruiting participants for a groundbreaking st...
Melbourne, Victoria – September 9, 2025 – The CCF Coleen Cunningham Foundation is partnering with researchers at the Alfred Hospital and Monash University to recruit participants for a groundbreaking study:...
Recruiting participants for a groundbreaking st...
Melbourne, Victoria – September 9, 2025 – The CCF Coleen Cunningham Foundation is partnering with researchers at the Alfred Hospital and Monash University to recruit participants for a groundbreaking study:...
Support CCF
Your Donations to CCF support our Programs for Individuals and Families touched by Atypical Parkinsonism. With your donations we are able to offer support and resources to those in need, and make sure No One Walks Alone on this journey.