Who We Are

At the Coleen Cunningham Foundation (CCF), we offer heartfelt support and vital resources to individuals and families facing atypical Parkinsonism. Our mission is to uplift lives through compassionate care—providing respite and hospice grants, support groups, and advocacy. We’re dedicated to building a community that inspires hope, fosters understanding, and strengthens resilience, empowering patients and caregivers to face this journey with dignity and connection.

  • Support & Advocacy Committee

    We aim to educate the public and medical community about atypical parkinsonism, promote early diagnosis, and support research for better treatments and a cure.

    Join Us and Make a Difference for PSP, MSA, CBD, DLB!

    LEARN MORE 
  • Faces & Voices of Atypical Parkinsonism

    Share your personal story with Atypical Parkinsonism, including PSP, MSA, CBD, and DLB, whether you are diagnosed, a caregiver, family member, friend, or medical professional. Together, we can light the path toward understanding and hope.

    LEARN MORE 
  • On the Journey - Weekly Zoom Support Group

    This Meeting is open to All; Caregivers, Individuals, Healthcare Workers and Loved Ones.

    Every Thursday 7-9 pm ET

    Attendees from all across the globe join us for support and to raise awareness.

    LEARN MORE 
  • Events & Fundraising

    CCF hosts and participates in awareness walks and fundraising initiatives to raise funds for Atypical Parkinsonism research and support services, benefiting those with PSP, MSA, CBD, and DLB.

    Over $35,000 Raised!

    VIEW EVENTS 
  • Library - Understanding Atypical Parkinsonism

    Find the information, support, and inspiration you need to better understand and manage these challenging conditions. Our library includes medical guides, personal memoirs, and practical advice to help patients, caregivers, and families navigate the complexities of Atypical Parkinsonism.

    VIEW LIBRARY 
  • Atypical Parkinsonism Blog

    Full of Valuable Resources, Information and Support.

    By Laura Louizos, since 2018.

    We have hundreds of comments on our blog posts from around the globe that offer valuable insight and support from others on this journey!

    VIEW BLOG 

Support CCF

Your Donations to CCF support our Programs for Individuals and Families touched by Atypical Parkinsonism. With your donations we are able to offer support and resources to those in need, and make sure No One Walks Alone on this journey.

  • 2025 Atypical Parkinsonism Awareness Walk

    May 3 Awareness Walk 2025, a vibrant, family-friendly event to raise awareness for Atypical Parkinsonism (PSP, MSA, CBD, DLB). Taking place on Saturday, May 3, 2025, from 12:00 PM to 3:00 PM at The Hub at Burlington Mall, this community gathering promises a meaningful and fun-filled afternoon.

    REGISTER HERE 
  • Atypical Parkinsonism Awareness Shop

    Welcome to our Atypical Parkinsonism Awareness Shop! We’re here to spark conversations about rare conditions like PSP, MSA, CBD, and DLB through bold, question-provoking tees.

    Join us—

    wear the cause, share the story!

    SHOP HERE 
  • Support CCF: Unleash Your Fundraising Power with Donorbox

    Create a Fundraiser in a Few Steps.
    Whether it’s for a special occasion, a personal challenge, or in memory of a loved one, you can set up your own fundraising page in minutes. Once it’s live, simply share the link with your friends, family, and network to start raising funds for CCF.

    START TODAY 

Understanding Atypical Parkinsonism

Find the information, support, and inspiration you need to better understand and manage these challenging conditions. Our library includes medical guides, personal memoirs, and practical advice to help patients, caregivers, and families navigate the complexities of PSP, MSA, CBD.

View Library
  • Board of Directors at Coleen Cunningham Foundation 2025

    Board of Directors at Coleen Cunningham Foundat...

    Introducing the backbone of CCF—our Board of Directors! This carousel showcases the talented individuals guiding our organization forward. Each photo is paired with a brief look at their unique role...

    Board of Directors at Coleen Cunningham Foundat...

    Introducing the backbone of CCF—our Board of Directors! This carousel showcases the talented individuals guiding our organization forward. Each photo is paired with a brief look at their unique role...

  • Introducing Your Guide to Atypical Parkinsonism Care: A Lifeline for Caregivers

    Introducing Your Guide to Atypical Parkinsonism...

    We’re thrilled to announce the release of Your Guide to Atypical Parkinsonism Care: Understanding and Supporting Loved Ones with PSP, MSA, CBD, and DLB, a vital new resource for anyone...

    Introducing Your Guide to Atypical Parkinsonism...

    We’re thrilled to announce the release of Your Guide to Atypical Parkinsonism Care: Understanding and Supporting Loved Ones with PSP, MSA, CBD, and DLB, a vital new resource for anyone...

  • Understanding Caregiver Burnout and Atypical Parkinsonism: Finding Relief Through Respite and Vacation Grants

    Understanding Caregiver Burnout and Atypical Pa...

    Caring for a loved one with atypical parkinsonism—conditions like Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA), or Corticobasal Degeneration (CBD)—is a labor of love that often comes with immense...

    1 comment

    Understanding Caregiver Burnout and Atypical Pa...

    Caring for a loved one with atypical parkinsonism—conditions like Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA), or Corticobasal Degeneration (CBD)—is a labor of love that often comes with immense...

    1 comment
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