Atypical Parkinsonism Blog

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Atypical Parkinsonism Blog by: Laura Louizos

UPDATE on RT001 Clinical Trials for PSP

UPDATE on RT001 Clinical Trials for PSP

From Sarah at Retrotope regarding RT001 Clinical Trials for PSP! Do not lose hope. Retrotope is in the process of developing drugs to treat a variety of neurological diseases, and...

UPDATE on RT001 Clinical Trials for PSP

From Sarah at Retrotope regarding RT001 Clinical Trials for PSP! Do not lose hope. Retrotope is in the process of developing drugs to treat a variety of neurological diseases, and...

Falls and Atypical Parkinsonism

The Falls and Frustrations of PSP

Written by Matthew J. Barrett, an associate professor of neurology and a movement disorder specialist at Virginia Commonwealth University in Richmond, Virginia. I often repeat her presentation to medical students: my...

The Falls and Frustrations of PSP

Written by Matthew J. Barrett, an associate professor of neurology and a movement disorder specialist at Virginia Commonwealth University in Richmond, Virginia. I often repeat her presentation to medical students: my...

Retrotope PSP

US FDA Grants Orphan Drug Designation for RT001

US FDA Grants Orphan Drug Designation for Retrotope’s RT001 in the Treatment of Progressive SupraNuclear Palsy (PSP). LOS ALTOS, CALIF, February 18, 2020– Retrotope announced today that the U.S. Food...

9 comments

US FDA Grants Orphan Drug Designation for RT001

US FDA Grants Orphan Drug Designation for Retrotope’s RT001 in the Treatment of Progressive SupraNuclear Palsy (PSP). LOS ALTOS, CALIF, February 18, 2020– Retrotope announced today that the U.S. Food...

9 comments
Rare Disease PSP, MSA, CBD

Do you think PSP/MSA/CBD are as rare as they say?

By: Laura Louizos The diagnosis is only a clinical diagnosis. The only way to officially confirm PSP, MSA or CBD is an autopsy. (This is why Brain donation is so...

2 comments

Do you think PSP/MSA/CBD are as rare as they say?

By: Laura Louizos The diagnosis is only a clinical diagnosis. The only way to officially confirm PSP, MSA or CBD is an autopsy. (This is why Brain donation is so...

2 comments
Advanced Care Planning Canada

Have you thought about Advanced Care Planning?

Canadian Hospice Palliative Care Association Releases New Resources to Support the Legal Processes of Advance Care Planning (ACP) in Canada IT’S ABOUT CONVERSATIONS. IT’S ABOUT WISHES. IT’S HOW WE CARE...

Have you thought about Advanced Care Planning?

Canadian Hospice Palliative Care Association Releases New Resources to Support the Legal Processes of Advance Care Planning (ACP) in Canada IT’S ABOUT CONVERSATIONS. IT’S ABOUT WISHES. IT’S HOW WE CARE...

Undiagnosed or Misdiagnosed PSP, MSA, CBD, Atypical Parkinsonism

Are you undiagnosed or misdiagnosed?

Has you or your loved one been misdiagnosed or undiagnosed and you are searching for answers? Has PSP, MSA or CBD been mentioned? It might be helpful to mention PSP/MSA/CBD,...

1 comment

Are you undiagnosed or misdiagnosed?

Has you or your loved one been misdiagnosed or undiagnosed and you are searching for answers? Has PSP, MSA or CBD been mentioned? It might be helpful to mention PSP/MSA/CBD,...

1 comment

Laura Louizos, Blog Author

Laura Louizos is a blogger, advocate, and founder of the Coleen Cunningham Foundation (CCF), raising awareness for atypical Parkinsonism, including PSP. Inspired by her mother’s 2018 PSP diagnosis, Laura shares her caregiver journey—struggles, triumphs, and insights—while offering resources and tips for living with neurodegenerative diseases. Her candid, inspiring blog supports a global community. Passionate and dedicated, Laura amplifies understanding and hope for those affected.

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