PSP BLOG

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Progressive Supranuclear Palsy PSP Blog by Laura Louizos, Since 2018

The Pillars of Support: PSP and Hospice Care

The Pillars of Support: PSP and Hospice Care

When the term "hospice care" comes to mind, many often mistakenly associate it solely with the end of life. While it's true that hospice care can be a crucial aid...

4 comments

The Pillars of Support: PSP and Hospice Care

When the term "hospice care" comes to mind, many often mistakenly associate it solely with the end of life. While it's true that hospice care can be a crucial aid...

4 comments
Navigating Clinical Trials for Progressive Supranuclear Palsy: Current Enrolment Opportunities

Navigating Clinical Trials for Progressive Supr...

Navigating clinical trials for Progressive Supranuclear Palsy (PSP) can be a complex process, but online platforms like ClinicalTrials.gov provide an accessible avenue. Clinical trials are research studies aiming to evaluate...

Navigating Clinical Trials for Progressive Supr...

Navigating clinical trials for Progressive Supranuclear Palsy (PSP) can be a complex process, but online platforms like ClinicalTrials.gov provide an accessible avenue. Clinical trials are research studies aiming to evaluate...

Advance Directives & Their Importance in Progressive Supranuclear Palsy (PSP)

Advance Directives & Their Importance in Progre...

PSP, or Progressive Supranuclear Palsy, is a fast-progressing neurodegenerative disease. With its symptoms often impairing communication abilities, it can introduce many challenges for patients and their families. Hence, the importance...

Advance Directives & Their Importance in Progre...

PSP, or Progressive Supranuclear Palsy, is a fast-progressing neurodegenerative disease. With its symptoms often impairing communication abilities, it can introduce many challenges for patients and their families. Hence, the importance...

Caregivers guide to psp

A Guide for Family Caregivers of Loved Ones New...

Progressive supranuclear palsy (PSP) is a rare brain disorder that causes serious and progressive problems with gait and balance, as well as complex eye movement and thinking problems. Being a...

1 comment

A Guide for Family Caregivers of Loved Ones New...

Progressive supranuclear palsy (PSP) is a rare brain disorder that causes serious and progressive problems with gait and balance, as well as complex eye movement and thinking problems. Being a...

1 comment
The Silent Influence: Understanding UTIs in People with Progressive Supranuclear Palsy (PSP)

The Silent Influence: Understanding UTIs in Peo...

Urinary tract infections (UTIs) can often have atypical presentations in people with neurodegenerative disorders, particularly Progressive Supranuclear Palsy (PSP). What may appear as a simple infection can subtly exacerbate existing...

The Silent Influence: Understanding UTIs in Peo...

Urinary tract infections (UTIs) can often have atypical presentations in people with neurodegenerative disorders, particularly Progressive Supranuclear Palsy (PSP). What may appear as a simple infection can subtly exacerbate existing...

The Integral PSP Care Team: Understanding Their Roles in Managing Progressive Supranuclear Palsy

The Integral PSP Care Team: Understanding Their...

Managing Progressive Supranuclear Palsy (PSP) involves a multidisciplinary team to address the broad range of symptoms and challenges the patient may face. The care team often includes:1. Neurologist: Typically leads...

1 comment

The Integral PSP Care Team: Understanding Their...

Managing Progressive Supranuclear Palsy (PSP) involves a multidisciplinary team to address the broad range of symptoms and challenges the patient may face. The care team often includes:1. Neurologist: Typically leads...

1 comment

Laura Louizos, Blog Author

Laura Louizos is a blogger and advocate for PSP (Progressive Supranuclear Palsy) and Founder of CCF for PSP Awareness.

PSP is a rare and debilitating neurological disorder that affects movement, balance, vision, speech, and cognitive function. Laura's mother was diagnosed with PSP in 2018, and since then, Laura has been dedicated to raising awareness about the disease and providing support to others affected by it.

Through our blog, Laura shares her personal journey as a caregiver, including her struggles, triumphs, and insights. She also provides resources and information about the disease, as well as tips and advice for living with PSP. Laura's writing is candid, inspiring, and informative, and her blog has become an important resource for the PSP community.

Laura is a passionate advocate for PSP awareness, and she works tirelessly to increase understanding and support for those affected by the disease. Her blog is a testament to her dedication and commitment to improving the lives of those with PSP, and she is a valuable voice in the fight against this devastating condition.