Dementia and Atypical Parkinsonism

Dementia and PSP “Like Dementia, But Not Dementia”

By: Laura Louizos

My mom would mix up her days sometimes and call people to reschedule thinking she was late or double book. Planning becomes an issue as the brain signals get delayed or mixed up. They can still be spot on with memory in other ways and it becomes puzzling to figure out. A doctor once told us - it’s like dementia but not dementia- there can be dementia along with PSP but not everyone experiences it or in the same way. My mom always passed with flying colours on her cognitive test, yet confused simple things more and more. She was aware of it and would comment about it but unable to do anything about it.

We had some good laughs to help get through it and just kept saying PSP sucks, and remember it was the disease and not the person. Patience is key as the disease progressed.

Sending you love and strength on this journey
Back to blog

Leave a public comment:

Please note, comments need to be approved before they are published.

  • WAITING By Bhavna

    WAITING By Bhavna

    For four years, she had lived with the unraveling of a rare brain disease. Progressive Supranuclear Palsy. Each step making her more dependent. Each fall more brutal. And each word...

    WAITING By Bhavna

    For four years, she had lived with the unraveling of a rare brain disease. Progressive Supranuclear Palsy. Each step making her more dependent. Each fall more brutal. And each word...

  • “Handling it well”

    “Handling it well”

    “You handled it so well.” Those words sting, a hollow echo far from my truth. I didn’t handle it. I unraveled, spiraling into the chaos of my own heart. My...

    1 comment

    “Handling it well”

    “You handled it so well.” Those words sting, a hollow echo far from my truth. I didn’t handle it. I unraveled, spiraling into the chaos of my own heart. My...

    1 comment
  • Register Today - Tickets Going Fast! May 3rd in Burlington Ontario

    Register Today - Tickets Going Fast! May 3rd in...

    Time’s ticking to register for our FREE Awareness Walk Starting at The Hub in Burlington Centre! Over 50 of you are already in, and the first 100 to sign up...

    Register Today - Tickets Going Fast! May 3rd in...

    Time’s ticking to register for our FREE Awareness Walk Starting at The Hub in Burlington Centre! Over 50 of you are already in, and the first 100 to sign up...

  • The Challenge of Being One: Helping as Many as Possible

    The Challenge of Being One: Helping as Many as ...

    There’s a quiet weight that comes with wanting to help others when you’re just one person. It’s a desire born from empathy, from seeing the struggles around you and feeling...

    The Challenge of Being One: Helping as Many as ...

    There’s a quiet weight that comes with wanting to help others when you’re just one person. It’s a desire born from empathy, from seeing the struggles around you and feeling...

1 of 4