By: Laura Louizos
My mom would mix up her days sometimes and call people to reschedule thinking she was late or double book. Planning becomes an issue as the brain signals get delayed or mixed up. They can still be spot on with memory in other ways and it becomes puzzling to figure out. A doctor once told us - it’s like dementia but not dementia- there can be dementia along with PSP but not everyone experiences it or in the same way. My mom always passed with flying colours on her cognitive test, yet confused simple things more and more. She was aware of it and would comment about it but unable to do anything about it.
We had some good laughs to help get through it and just kept saying PSP sucks, and remember it was the disease and not the person. Patience is key as the disease progressed.
Sending you love and strength on this journey
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