Cherishing Each Day: Embracing Life with a PSP Diagnosis

Cherishing Each Day: Embracing Life with a PSP Diagnosis

Life is an extraordinary gift, and it is often during our most challenging moments that we come to truly appreciate its value. When faced with a Progressive Supranuclear Palsy (PSP) diagnosis, the importance of cherishing every day becomes even more profound. It's a reminder that time is a precious and fleeting commodity, and each moment holds immeasurable worth.

PSP, a rare neurodegenerative disease, brings with it uncertainty and a range of physical and cognitive challenges. The prognosis varies from person to person, and it is impossible to predict how long one may live with the condition. My mom was told she had 2-6 years at diagnosis but unfortunately she passed away 6 months later. As my experience with my mom exemplifies, the timeline can be unpredictable, defying medical expectations.

Knowing this, it becomes essential to embrace the present, to live fully in the here and now. It means savoring the simple joys, finding gratitude in the smallest of moments, and treasuring the connections we have with our loved ones. It means recognizing that every day is a precious opportunity to create memories, share laughter, and show love.

In the face of adversity, we discover the resilience and strength within us. It is in these moments that we find the courage to make the most of the time we have, even when faced with the challenges that PSP brings. Embracing each day is about finding meaning and purpose, whether it's through pursuing passions, spending quality time with family and friends, or engaging in activities that bring us joy.

My mom's journey taught us that life is not measured solely by the number of years lived, but by the depth of experiences and the impact we make on others. She reminded us that every day is a chance to leave a lasting legacy, to touch lives with love and compassion. Though her time was cut short, the imprint she left on our heart and the memories we shared will endure forever.

Let us be reminded by my mom's story and honor her spirit by cherishing each day, not just for ourselves but also for those who have been affected by PSP. Let us advocate for greater awareness and support, so that others may receive the care and resources they need on their own journeys.

Remember, even in the face of uncertainty, we have the power to choose how we embrace each day. Let us live with gratitude, love, and the determination to make every moment count. Together, we can make a difference, raising awareness, supporting research, and cherishing each day as the precious gift it truly is.

#CherishEachDay #PSPAwareness #MakeEveryMomentCount

Back to blog

2 comments

Kelly

Laura Louizos responding here. I’m genuinely heartbroken to hear about the sudden change in your dad’s diagnosis. The emotional rollercoaster you’re on is indescribable and incredibly challenging, especially with the demands of being a military wife and having a large family. It’s okay to feel lost, confused, and overwhelmed. The feelings of denial and avoidance are natural reactions to such shocking news. Take one day at a time, and remember, it’s okay to seek support for yourself, whether that’s through friends, support groups, or therapy. You’re not alone in this, and there are many out there who understand and want to help. Take care of yourself and lean on those who offer a shoulder. Sending you immense strength and warmth during this difficult time.
xx hugs

Laura

So my dad for the last 5 years we have been told had Parkinson’s we have all finally settled with the diagnosis every doctor confirmed….. u till about 3 weeks ago when we where told he has PSP….. in the late stages….. and time is extremely limited! Do I know the shock the rush for time u don’t have etc I have 12 so Les my parents where foster parents….. so I’m lost confused an emotional wreck besides my self kinda numb but also avoiding and not trying address it and also just flat out refusing he’s being taken from me I’m a military wife so it’s been extra rough

Kelly

Leave a comment

Please note, comments need to be approved before they are published.

PSP Awareness Shop

Make a purchase with purpose. Each sale supports the fight against Atypical Parkinsonism through the Coleen Cunningham Foundation for PSP Awareness!

Shop Now
  • International Caregivers Day

    International Caregivers Day

    Laura Louizos

    Happy International Caregivers Day to all the incredible members of our community! Today, we celebrate each one of you - the unsung heroes who dedicate your days and nights, your...

    International Caregivers Day

    Laura Louizos

    Happy International Caregivers Day to all the incredible members of our community! Today, we celebrate each one of you - the unsung heroes who dedicate your days and nights, your...

  • Happy Easter

    Happy Easter

    Laura Louizos

    As we embrace the vibrant hues of Spring and the joyful spirit of Easter, we want to extend our warmest wishes to each and every one of you. This season,...

    1 comment

    Happy Easter

    Laura Louizos

    As we embrace the vibrant hues of Spring and the joyful spirit of Easter, we want to extend our warmest wishes to each and every one of you. This season,...

    1 comment
  • Global Atypical Parkinsonism Awareness Walk MAY 2024

    Global Atypical Parkinsonism Awareness Walk MAY...

    Laura Louizos

    Join the Global Atypical Parkinsonism Awareness Walk MAY 2024! Calling all change-makers and advocates! We are thrilled to announce the Global Atypical Parkinsonism Awareness Walk 2024, taking place in May...

    Global Atypical Parkinsonism Awareness Walk MAY...

    Laura Louizos

    Join the Global Atypical Parkinsonism Awareness Walk MAY 2024! Calling all change-makers and advocates! We are thrilled to announce the Global Atypical Parkinsonism Awareness Walk 2024, taking place in May...

  • Thursday Zoom Support Group: On The Journey - Supports and Resources

    Thursday Zoom Support Group: On The Journey - S...

    Laura Louizos

    Join Our Weekly Thursday Zoom Support Group: On The Journey - Supports and Resources We are excited to extend an invitation to our weekly support group meeting, “On The Journey...

    Thursday Zoom Support Group: On The Journey - S...

    Laura Louizos

    Join Our Weekly Thursday Zoom Support Group: On The Journey - Supports and Resources We are excited to extend an invitation to our weekly support group meeting, “On The Journey...

1 of 4