UTI's in Progressive Supranuclear Palsy PSP

UTIs with PSP

By Laura Louizos

My Mom had a very strong smell to her urine and even more so when a UTI was present. It is very important to stay on top of UTIs with PSP as they can become tricky fast. We bought home testing strips that we could test at home to save on trips to the doctors. The UTIs became a hassle and a bit tougher to treat as the disease progressed. A couple of them for my mom required multiple antibiotic treatments before clearing. They also can affect PSP patients differently from others. My mom didn’t show the common symptoms. Most of the time there was no fever, just a stronger smell and sometimes abdominal discomfort.

Always better to be safe than sorry with UTIs. I had a running script at the pharmacy for moms antibiotics. Still always have a sample before and after but anytime test at home showed positive we started antibiotics. If we were late starting them, they lasted longer and had more negative lasting side effects.

Sending you hugs and strength
Back to blog

Leave a comment

Please note, comments need to be approved before they are published.

PSP Awareness Shop

Make a purchase with purpose. Each sale supports the fight against Atypical Parkinsonism through the Coleen Cunningham Foundation for PSP Awareness!

Shop Now
  • Global Atypical Parkinsonism Awareness Walk MAY 2024

    Global Atypical Parkinsonism Awareness Walk MAY...

    Laura Louizos

    Join the Global Atypical Parkinsonism Awareness Walk MAY 2024! Calling all change-makers and advocates! We are thrilled to announce the Global Atypical Parkinsonism Awareness Walk 2024, taking place in May...

    Global Atypical Parkinsonism Awareness Walk MAY...

    Laura Louizos

    Join the Global Atypical Parkinsonism Awareness Walk MAY 2024! Calling all change-makers and advocates! We are thrilled to announce the Global Atypical Parkinsonism Awareness Walk 2024, taking place in May...

  • Thursday Zoom Support Group: On The Journey - Supports and Resources

    Thursday Zoom Support Group: On The Journey - S...

    Laura Louizos

    Join Our Weekly Thursday Zoom Support Group: On The Journey - Supports and Resources We are excited to extend an invitation to our weekly support group meeting, “On The Journey...

    Thursday Zoom Support Group: On The Journey - S...

    Laura Louizos

    Join Our Weekly Thursday Zoom Support Group: On The Journey - Supports and Resources We are excited to extend an invitation to our weekly support group meeting, “On The Journey...

  • Atypical Parkinsonism Awareness Pack designed to support and educate on atypical Parkinsonian disorders.

    Atypical Parkinsonism Awareness Pack designed t...

    Laura Louizos

    Get Yours Today on Amazon! Introducing the Atypical Parkinsonism Awareness Pack designed to support and educate on atypical Parkinsonian disorders. This pack includes: - 4 unique Teal Awareness Vinyl Decals:...

    Atypical Parkinsonism Awareness Pack designed t...

    Laura Louizos

    Get Yours Today on Amazon! Introducing the Atypical Parkinsonism Awareness Pack designed to support and educate on atypical Parkinsonian disorders. This pack includes: - 4 unique Teal Awareness Vinyl Decals:...

  • Rare Disease Day: Shining a Light on Progressive Supranuclear Palsy (PSP)

    Rare Disease Day: Shining a Light on Progressiv...

    Laura Louizos

    Today, on Rare Disease Day, we turn our focus towards a condition that many may not have heard of, yet it profoundly impacts the lives of those it touches: Progressive...

    Rare Disease Day: Shining a Light on Progressiv...

    Laura Louizos

    Today, on Rare Disease Day, we turn our focus towards a condition that many may not have heard of, yet it profoundly impacts the lives of those it touches: Progressive...

1 of 4