Advanced Planning with PSP

Advanced Planning with PSP

Advanced planning is an important consideration for individuals with PSP (progressive supranuclear palsy) and their families. PSP is a progressive and incurable disease, and as the disease progresses, it can lead to significant physical and cognitive challenges that may impact a person's ability to make decisions and communicate their wishes. Advanced planning can help ensure that a person's wishes are respected and their healthcare needs are met as their disease progresses.

Here are some advanced planning considerations for individuals with PSP and their families:

  1. Advance directives: Advance directives are legal documents that allow individuals to specify their healthcare wishes in the event they are unable to make decisions for themselves. This can include a living will, which outlines specific treatments or interventions a person does or does not want to receive, and a healthcare power of attorney, which designates someone to make healthcare decisions on their behalf.
  2. Financial planning: As PSP progresses, individuals may need increasing levels of care and support, which can result in significant expenses. Financial planning can help ensure that adequate resources are available to meet these needs.
  3. Caregiver support: As the disease progresses, caregivers may also need support and assistance. Advanced planning can include identifying potential caregivers, developing a care plan, and seeking support from community resources or organizations.
  4. End-of-life planning: End-of-life planning involves making decisions about end-of-life care, such as hospice care, palliative care, and funeral arrangements. This can be a difficult but important consideration for individuals with PSP and their families.

It's important for individuals with PSP and their families to discuss advanced planning with their healthcare providers and seek guidance from legal and financial professionals as needed. By proactively planning for the future, individuals with PSP and their families can have greater peace of mind and ensure that their healthcare needs and wishes are respected throughout the course of the disease.

Back to blog

Leave a comment

Please note, comments need to be approved before they are published.

PSP Awareness Shop

Make a purchase with purpose. Each sale supports the fight against Atypical Parkinsonism through the Coleen Cunningham Foundation for PSP Awareness!

Shop Now
  • Lighting Up Burlington Pier for PSP Awareness: A Beacon of Hope

    Lighting Up Burlington Pier for PSP Awareness: ...

    Laura Louizos

    On May 30th, from 8 PM to midnight, the Burlington Pier will be bathed in a radiant teal glow. This illuminating event is more than just a beautiful spectacle; it’s...

    Lighting Up Burlington Pier for PSP Awareness: ...

    Laura Louizos

    On May 30th, from 8 PM to midnight, the Burlington Pier will be bathed in a radiant teal glow. This illuminating event is more than just a beautiful spectacle; it’s...

  • Ice Cream Challenge

    Ice Cream Challenge

    Laura Louizos

    Atypical Parkinsonism Ice Cream Challenge for PSP, MSA, CBD and DLB PSP- Progressive Supranuclear Palsy MSA- Multiple System Atrophy CBD- Corticobasal Degeneration DLB- Dementia with Lewy Bodies  May is Awareness...

    Ice Cream Challenge

    Laura Louizos

    Atypical Parkinsonism Ice Cream Challenge for PSP, MSA, CBD and DLB PSP- Progressive Supranuclear Palsy MSA- Multiple System Atrophy CBD- Corticobasal Degeneration DLB- Dementia with Lewy Bodies  May is Awareness...

  • 🌟 You’re Invited to Tim Talks! 🌟

    🌟 You’re Invited to Tim Talks! 🌟

    Laura Louizos

    Join us this Thursday, April 25th, from 7-9 PM ET for an inspiring session with PSP Warrior, Tim Brown! This month, we’re diving into awareness topics to gear up for...

    🌟 You’re Invited to Tim Talks! 🌟

    Laura Louizos

    Join us this Thursday, April 25th, from 7-9 PM ET for an inspiring session with PSP Warrior, Tim Brown! This month, we’re diving into awareness topics to gear up for...

  • Happy National Volunteer Week!

    Happy National Volunteer Week!

    Laura Louizos

    As we celebrate this special week, we want to extend a heartfelt thank you to all our dedicated volunteers. Your selfless contributions and unwavering commitment have been instrumental in making...

    Happy National Volunteer Week!

    Laura Louizos

    As we celebrate this special week, we want to extend a heartfelt thank you to all our dedicated volunteers. Your selfless contributions and unwavering commitment have been instrumental in making...

1 of 4