Broadening Horizons: Sharing PSP Awareness Beyond Our Inner Circles

Broadening Horizons: Sharing PSP Awareness Beyond Our Inner Circles

Every day, individuals, families, and medical professionals grapple with the impact of Progressive Supranuclear Palsy (PSP), a neurodegenerative disease that remains under-recognized both in the public sphere and within many healthcare settings.

The effort to change this begins with us. Our community at pspawareness.com is thriving, with over 5000 monthly website visitors seeking resources, sharing their experiences, and finding support. This growing community is a testament to the hunger for knowledge and the need for shared experiences around PSP.

Our social media platforms echo this sentiment, boasting over 10,000 engagements each month. These engagements – likes, shares, comments, and direct interactions – are more than mere numbers. They're proof of the ever-widening circle of individuals touched by PSP and committed to raising awareness.

The importance of sharing and spreading awareness of PSP beyond our immediate circles cannot be overstated. Many remain unaware of this disease's existence, its symptoms, prognosis, and the support available. Expanding the breadth of our outreach has the potential to shape lives, influence research, and foster a more inclusive society.

When we engage in conversations about PSP with those outside our network, we open doors to unseen opportunities. The stranger you educate today may be a future caregiver, a pioneering researcher, or a philanthropist looking for a cause to support tomorrow.

In the digital age, sharing is more potent than ever. Each post, tweet, or blog about PSP can reach a vast audience, generating ripple effects we may never fully measure but which can bring about real change.

Let's step out of our comfort zones and take responsibility for educating the unknown about PSP. Remember, each shared story, each piece of information, brings us one step closer to a world better equipped to tackle Progressive Supranuclear Palsy.

#PSPAwareness #WeAreInThisTogether

Back to blog

Leave a public comment:

Please note, comments need to be approved before they are published.

  • 🥯 Bagel Fundraiser

    🥯 Bagel Fundraiser

    JOIN THE COLEEN CUNNINGHAM FOUNDATION 🥯 Bagel Fundraiser FOR THE BENEFIT OF THOSE WITHAtypical Parkinson Diseases NOVEMBER 2ND • 11-1 PM AT THE ROCKVILLE JCC IN PARTNERSHIP WITH BETHESDA BAGELS

    🥯 Bagel Fundraiser

    JOIN THE COLEEN CUNNINGHAM FOUNDATION 🥯 Bagel Fundraiser FOR THE BENEFIT OF THOSE WITHAtypical Parkinson Diseases NOVEMBER 2ND • 11-1 PM AT THE ROCKVILLE JCC IN PARTNERSHIP WITH BETHESDA BAGELS

  • HOPE by Bhavna

    HOPE by Bhavna

    Remember the first timerobins sang in your garden,their delicate bodies pulsing with song,their hearts daring to rise, like yours.How the moon spilled its silver over your window,and your mother said,...

    HOPE by Bhavna

    Remember the first timerobins sang in your garden,their delicate bodies pulsing with song,their hearts daring to rise, like yours.How the moon spilled its silver over your window,and your mother said,...

  • Active Neurodegenerative Disease Clinical Trials (PSP, MSA, DLB, CBS, Parkinsonian Syndromes)

    Active Neurodegenerative Disease Clinical Trial...

    Progressive Supranuclear Palsy (PSP) Trials ClinicalTrials.gov ID: NCT06355531 – PROSPERPurpose: To evaluate whether FNP-223 slows disease progression in PSP, using the PSP Rating Scale (PSPRS) over 52 weeks. The trial also...

    1 comment

    Active Neurodegenerative Disease Clinical Trial...

    Progressive Supranuclear Palsy (PSP) Trials ClinicalTrials.gov ID: NCT06355531 – PROSPERPurpose: To evaluate whether FNP-223 slows disease progression in PSP, using the PSP Rating Scale (PSPRS) over 52 weeks. The trial also...

    1 comment
  • Recruiting participants for a groundbreaking study: “Assessing Cognitive Trajectories in Progressive Supranuclear Palsy Using Remote Computerized Reaction Time Tasks.”

    Recruiting participants for a groundbreaking st...

    Melbourne, Victoria – September 9, 2025 – The CCF Coleen Cunningham Foundation is partnering with researchers at the Alfred Hospital and Monash University to recruit participants for a groundbreaking study:...

    Recruiting participants for a groundbreaking st...

    Melbourne, Victoria – September 9, 2025 – The CCF Coleen Cunningham Foundation is partnering with researchers at the Alfred Hospital and Monash University to recruit participants for a groundbreaking study:...

1 of 4