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Do your loved ones become more demanding?
By: Laura Louizos
It's Exhausting! I miss it now and would trade anything for it back, but yes at the time it was very exhausting.
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How much info is too much?
By: Laura Louizos
My Mom knew most, she would tell me she didn’t want to know or talk about it....But she would always ask me questions and if she ...
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Favourite food, alcoholic drink or guilty pleasure?!
By: Laura Louizos
When it comes to their favourite food, alcoholic drink or guilty pleasure who are we to stop it as long as there is no direct neg...
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Why does it take so long to get a diagnosis for PSP, MSA, CBD?
PSP, MSA, CBD is a clinical diagnosis and can only be officially confirmed after an autopsy. This makes it hard along with how rare and little is ...
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Dementia and PSP “Like Dementia, But Not Dementia”
By: Laura Louizos
My mom would mix up her days sometimes and call people to reschedule thinking she was late or double book. Planning becomes an is...
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Moving, Stairs, Falls & Atypical Parkinsonism
If possible to always have someone nearby, seems to be the best prevention of falls.
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How do you gauge the progression and timeline with PSP?
It’s so tough to gauge. Can somethings make it worse?
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UTIs with PSP
UTIs with PSP can become tricky fast!
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Sleep wake regulation in PSP
Sleep/wake regulation that can lead to profound sleep deprivation
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What are some Eye issues with PSP?
We hear a lot of questions about eye issues in PSP (Progressive Supranuclear Palsy). This might help!
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