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The RiJe® Dysphagia Cup
We found a great product we had to share with you all!!
The RiJe® Dysphagia Cup is a drinking aid designed to improve h...
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Red Light Therapy (RLT) with PSP, MSA, CBD
Red light therapy (RLT) is a treatment that may help skin, muscle tissue, and other parts of your body heal. It exposes you to low levels of red or...
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The International Dysphagia Diet Standardisation Initiative (IDDSI)
IDDSI has created handouts in consultation with clinicians and patients. The handouts can be used by people who have feeding, chewing or swallowing...
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Mumbai doctors perform rare brain surgery in PSP
Four electrodes placed in brain of patient with PSP syndrome during six-hour-long procedure.
In a first, doctors at Mumbai’s Jaslok Hospital recen...
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Do hands and feet curl and become stiff?
Image Credit; Michael J Fox Foundation
Yes it’s a symptom of the disease and it’s called Dystonia. Dystonia is a movement disorder in which a perso...
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Canadian Tax Help for Disabled Individuals
Canadian disability tax credit! Have you applied? It can help with those extra medical expenses.Once you apply and are approved you are able to c...
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CORD presents Rare Disease Drug Strategy Webinars
PMPRB: Friend or Foe of Rare Disease Drug Strategy
In February 2019 the federal government committed $1billion over two years starting in 2022 ...
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Awareness Apparel for Atypical Parkinsonism!
AWARENESS APPAREL & More
Show your Support and Help Raise Awareness for PSP and Atypical Parkinsonism!
FREE Shipping! No TAX!
5% of all sales ...
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Association of Stress-Related Disorders
Association of Stress-Related Disorders With Subsequent Neurodegenerative Diseases
By: Huan Song, MD, PhD; Johanna Sieurin, MSc; Karin Wirdefeldt, ...
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US FDA Grants Orphan Drug Designation for RT001
US FDA Grants Orphan Drug Designation for Retrotope’s RT001 in the Treatment of Progressive SupraNuclear Palsy (PSP).
LOS ALTOS, CALIF, February 18...
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Do you think PSP/MSA/CBD are as rare as they say?
By: Laura Louizos
The diagnosis is only a clinical diagnosis. The only way to officially confirm PSP, MSA or CBD is an autopsy. (This is why Brain ...
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Have you thought about Advanced Care Planning?
Canadian Hospice Palliative Care Association Releases New Resources to Support the Legal Processes of Advance Care Planning (ACP) in Canada
I...
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